Healthcare Experiences and Needs of Older Adults Living With HIV: A Qualitative Study

IF 3.2 3区医学 Q1 NURSING Journal of Clinical Nursing Pub Date : 2024-11-11 DOI:10.1111/jocn.17538

Marie Lund, Annelie J. Sundler, Ewa Carlsson Lalloo

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Abstract

Aim

To explore the healthcare experiences and needs of older adults living with HIV in Sweden.

Design

A phenomenological study using qualitative thematic analysis.

Methods

Data were gathered through semistructured qualitative interviews and analysed using thematic analysis. A purposive sample of individuals ageing and living with HIV was recruited for this study.

Results

A total of 22 participants aged 65 years and older, with a mean age of 75 years, participated in the study. Living with HIV meant a need to rely on consistent healthcare and treatment over the course of one's lifetime. The experiences of older adults were described under four themes: relying on access to health care, desiring involvement and shared decision-making, the importance of trust and confidentiality and experiences of stigma in healthcare visits.

Conclusion

Living and ageing with HIV involved recurring exposure and vulnerability in healthcare encounters, and experiences of being exposed to HIV-related stigma, especially outside HIV clinics. Continuity and being seen as a person in healthcare encounters were important. Enhancing HIV knowledge alongside fostering supportive attitudes and approaches of healthcare professionals is critical for ensuring high-quality and nondiscriminating health care.

Implications for the Profession and/or Patient Care

Meeting the needs of older adults living with HIV requires a person-centred approach, including active involvement and shared decision-making between patients and healthcare providers.

Impact

This study describes the healthcare experiences and needs of older adults, aged 65 years and older, living with HIV, a population that is not typically investigated in qualitative research. Living and ageing with HIV means a vulnerability where the attitudes of professionals and the active involvement of the patient become significant for quality care. The findings can help with the implementation of policies and practices for the care of older adults living with HIV.

Reporting Method

The Consolidated Criteria for Reporting Qualitative Studies (COREQ) was used.

Patient and Public Contribution

Patient representatives were involved in discussions on data collection and the development of the interview guide.

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感染艾滋病毒的老年人的医疗保健经历和需求：定性研究。

目的：探讨瑞典感染艾滋病毒的老年人的医疗保健经验和需求：设计：采用定性主题分析法进行现象学研究：通过半结构化定性访谈收集数据，并使用主题分析法进行分析。本研究对感染艾滋病毒的老年个体进行了有目的的抽样调查：共有 22 名 65 岁及以上的参与者参与了研究，平均年龄为 75 岁。感染艾滋病毒意味着需要终生依赖持续的医疗保健和治疗。老年人的经历分为四个主题：依赖医疗保健服务、希望参与和共同决策、信任和保密的重要性以及在医疗保健就诊中遭受侮辱的经历：结论：携带艾滋病毒生活和进入老年的老年人在医疗保健过程中反复暴露自己，易受伤害，并遭受与艾滋病毒相关的污名化，尤其是在艾滋病毒诊所之外。在医疗保健过程中，持续性和被视为一个人非常重要。加强对艾滋病病毒的了解，同时培养医疗保健专业人员的支持态度和方法，对于确保高质量和无歧视的医疗保健服务至关重要：满足感染艾滋病毒的老年人的需求需要以人为本的方法，包括患者和医疗服务提供者之间的积极参与和共同决策：本研究描述了 65 岁及以上感染艾滋病病毒的老年人的医疗保健经历和需求，而定性研究通常不会对这一人群进行调查。携带艾滋病病毒生活和步入老年意味着一种脆弱性，在这种情况下，专业人员的态度和病人的积极参与对优质护理具有重要意义。研究结果有助于实施为感染艾滋病毒的老年人提供护理的政策和实践：报告方法：采用定性研究综合报告标准（COREQ）：患者和公众的贡献：患者代表参与了数据收集和访谈指南制定的讨论。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Clinical Nursing 医学-护理

CiteScore

6.40

自引率

2.40%

发文量

审稿时长

2 months

期刊介绍： The Journal of Clinical Nursing (JCN) is an international, peer reviewed, scientific journal that seeks to promote the development and exchange of knowledge that is directly relevant to all spheres of nursing practice. The primary aim is to promote a high standard of clinically related scholarship which advances and supports the practice and discipline of nursing. The Journal also aims to promote the international exchange of ideas and experience that draws from the different cultures in which practice takes place. Further, JCN seeks to enrich insight into clinical need and the implications for nursing intervention and models of service delivery. Emphasis is placed on promoting critical debate on the art and science of nursing practice. JCN is essential reading for anyone involved in nursing practice, whether clinicians, researchers, educators, managers, policy makers, or students. The development of clinical practice and the changing patterns of inter-professional working are also central to JCN''s scope of interest. Contributions are welcomed from other health professionals on issues that have a direct impact on nursing practice. We publish high quality papers from across the methodological spectrum that make an important and novel contribution to the field of clinical nursing (regardless of where care is provided), and which demonstrate clinical application and international relevance.