Between epistemic injustice and therapeutic jurisprudence: Coronial processes involving families of autistic people, people with learning disabilities and/or mental ill health.

IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Sociology of health & illness Pub Date : 2024-11-18 DOI:10.1111/1467-9566.13855
Sara Ryan, Francesca Ribenfors, Magdalena Mikulak, Deborah Coles
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Abstract

Understanding how and why someone dies unexpectedly is key to bereaved family members. The coronial process in England investigates instances where the cause of death is unknown, violent or unnatural and/or occurred in state detention. Families are held to be at the centre of this process and the coroner's role has extended to concern about therapeutic jurisprudence, that is, how legal processes can minimise negative consequences for participants without jeopardising due process. Therapeutic jurisprudence involves unresolved tensions, however, and an epistemic power imbalance. Within the inquest, knowledge is produced, evaluated and contested, and epistemic privilege may be unevenly distributed. The inquest is also a process that, as we demonstrate, requires epistemic courage and resistance on the part of families. Families with relatives who are autistic, have learning disabilities and/or mental ill health can experience epistemic and structural injustice before an unexpected death which makes the distinctiveness of their experiences important to understand. Here, we report on a qualitative interview project which focused on how bereaved families experience the coronial process after their relative died in receipt of health and/or social care support.

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认识论不公正与治疗法学之间:涉及自闭症患者、学习障碍者和/或精神疾病患者家庭的死因调查程序。
对于失去亲人的家庭成员来说,了解某人意外死亡的过程和原因至关重要。英格兰的验尸官程序调查死因不明、暴力或非自然死亡和/或在国家拘留期间死亡的情况。家属被认为是这一程序的核心,而验尸官的作用已扩展到对治疗法学的关注,即法律程序如何在不损害正当程序的情况下最大限度地减少对参与者的负面影响。然而,治疗法学涉及到尚未解决的紧张关系,以及认识论上的权力不平衡。在审讯过程中,知识被生产、评估和争论,认识特权可能分配不均。正如我们所展示的,审讯也是一个需要认识论勇气和家庭抵制的过程。有自闭症、学习障碍和/或精神疾病亲属的家庭可能会在意外死亡前经历认识论和结构性的不公正,这使得了解他们经历的独特性变得非常重要。在此,我们报告了一个定性访谈项目的情况,该项目重点关注失去亲人的家庭在其亲属接受医疗和/或社会关怀支持后死亡时如何经历死因裁判过程。
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来源期刊
CiteScore
6.10
自引率
6.90%
发文量
156
期刊介绍: Sociology of Health & Illness is an international journal which publishes sociological articles on all aspects of health, illness, medicine and health care. We welcome empirical and theoretical contributions in this field.
期刊最新文献
From Cells to Organoids: Sociological Considerations for the Bioengineering of Human Models. The Golden Ticket? Widening Access in UK Medicine and the Making of an Emotional Proletariat. Between epistemic injustice and therapeutic jurisprudence: Coronial processes involving families of autistic people, people with learning disabilities and/or mental ill health. Navigating the Limits of Diagnosis: Young Adults' Experiences of Chronic Living. Patient-Generated Data as Interventions in Doctor-Patient Relationships? Negotiating (Un)Invited Participation in Medical Consultations.
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