Integrating patient-centred and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways.

IF 2.7 Q2 HEALTH CARE SCIENCES & SERVICES Palliative Care and Social Practice Pub Date : 2024-11-19 eCollection Date: 2024-01-01 DOI:10.1177/26323524241296143
Anne-Lore Scherrens, An Jacobs, Kim Beernaert, Koen Pardon, Eveline Raemdonck, Marie Fallon, Kathrin Cresswell, Nusa Faric, Robin Williams, Tonje Lundeby, Marianne J Hjermstad, Luc Deliens, Stein Kaasa
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Abstract

Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organisational contexts of cancer centres across Europe through the application of implementation science strategies. This paper describes the current state of applying PCC in routine cancer care and presents a forward-looking perspective on how the MyPath project can successfully adopt and implement digital PROMs across countries. A literature search was conducted to provide the state-of-the art.

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整合以患者为中心和以肿瘤为中心的癌症护理:欧盟--MyPath 实施项目为护理路径提供了创新的数字化解决方案。
癌症是导致死亡的主要原因之一,预计新发病例还会增加。医疗技术的进步提高了治愈率,延长了患者的生命,但患者的生存期涉及到高症状负担、功能丧失和情绪困扰。在整个护理过程中,改善以患者为中心的护理(PCC)和生活质量至关重要。改善的关键在于系统地使用患者报告的结果测量(PROMs)和以患者为中心的护理路径(PCCPs)。尽管已经证实了以患者为中心的护理路径的益处,但目前的癌症护理主要集中在以肿瘤为中心的护理方法上,往往忽视了患者的观点。以证据为基础的患者为中心护理路径指南未能被常规纳入临床实践。由地平线 2020 项目资助的欧洲 MyPath 项目旨在通过开发、实施和评估带有 PROMs 的数字化 PCCP 来弥补这些不足。MyPath 项目将通过应用实施科学策略来改善欧洲癌症中心的组织环境。本文介绍了在常规癌症治疗中应用 PCC 的现状,并就 MyPath 项目如何在各国成功采用和实施数字化 PROM 提出了前瞻性观点。我们进行了文献检索,以了解最新进展。
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来源期刊
Palliative Care and Social Practice
Palliative Care and Social Practice Nursing-Advanced and Specialized Nursing
CiteScore
2.90
自引率
0.00%
发文量
37
审稿时长
9 weeks
期刊最新文献
Optimizing palliative care education nationwide: a practice example from The Netherlands. Integrating patient-centred and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways. The Professional Guest: conceptualizing home visits in palliative care settings. Medical influence: what does success look like? Palliative care consultation in the last week of life and associated factors: a cross-sectional general population study.
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