Transitions-Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-11-20 DOI:10.1111/jar.13322

J. Jordan, M. Larkin, E. Tilley, J. Vseteckova, S. Ryan, L. Wallace

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Abstract

Background

There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts.

Method

A rapid scoping review of published and unpublished literature, using systematic methods of data searching, extraction and analysis.

Results

Exhaustion, reluctance to burden others, distrust of alternative living arrangements and deep interpersonal ties with their family member with intellectual disabilities mean ageing carers can avoid planning ahead. There is a lack of appropriate information, support and professional advice available. Developing trust in services is critical, as is a ‘whole family’ approach to planning.

Conclusions

More research is vital to understand the support ageing carers receive to make choices, and how it meets their needs.

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为有挑战他人行为的智障老年人的家庭照顾者提供与过渡相关的支持：系统性快速范围界定审查》。

背景：在英国，智障老年人（40 岁以上）的老年家庭照护者人数越来越多，他们的行为对他人构成了挑战。了解这些照顾者在支持其老年家庭成员过渡到不同照顾环境时的需求和经历非常重要：方法：采用系统的数据搜索、提取和分析方法，对已发表和未发表的文献进行快速范围界定综述：精疲力竭、不愿给他人增加负担、不信任替代性生活安排以及与智障家庭成员之间深厚的人际关系意味着老年照护者可能会避免未雨绸缪。他们缺乏适当的信息、支持和专业建议。建立对服务的信任至关重要，"整个家庭 "的规划方法也是如此：更多的研究对于了解高龄照护者在做出选择时所获得的支持以及如何满足他们的需求至关重要。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.