Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities.

IF 1.7 3区 医学 Q2 EDUCATION, SPECIAL Intellectual and Developmental Disabilities Pub Date : 2024-12-01 DOI:10.1352/1934-9556-62.6.486
Chak Li, Meghan M Burke, Julie Lounds Taylor, Leann S DaWalt, Zachary Rossetti
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Abstract

Advocacy has long been heralded as a way to create change for individuals with intellectual and developmental disabilities (IDD) and their families. However, without an established measure, it is difficult to accurately characterize advocacy activities. Drawing from extant research, the Advocacy Activities Scale was developed to assess three domains of parent advocacy: advocacy for one's own children, advocacy for other families, and advocacy for systemic change. Factor analyses were conducted using data from two projects reflecting 382 parents of individuals with IDD from seven states and the District of Columbia. The scale confirmed the three moderately correlated domains of parent advocacy and demonstrated that the scale has high: reliability, validity, test-retest reliability, and moderate correlations with related measures.

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为智障和发育障碍人士的家长制定宣传活动量表。
长期以来,宣传一直被认为是为智力和发育障碍 (IDD) 人士及其家庭带来改变的一种方式。然而,由于没有既定的衡量标准,很难准确描述倡导活动的特点。根据现有研究,我们开发了 "倡导活动量表 "来评估家长倡导活动的三个领域:为自己的孩子倡导、为其他家庭倡导和为系统性变革倡导。我们利用两个项目的数据进行了因子分析,这些数据反映了来自七个州和哥伦比亚特区的 382 名智障人士家长的情况。该量表确认了家长维权的三个中度相关领域,并证明该量表具有较高的信度、效度、重测信度以及与相关测量的中度相关性。
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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
41
期刊介绍: Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.
期刊最新文献
"You Don't Know What You Don't Know": Parent Perspectives on Navigating Disability-Related Information and Resources. Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities. Family Resilience in Families of Children With Autism Spectrum Disorders: Ecological Systems Theory Perspective. Presidential Address 2024-Achieving Health Outcomes Across the Lifespan. Racial/Ethnicity Disparities in COVID-19 Worry for Caregivers of Adults With Intellectual and Developmental Disabilities.
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