Perception and coping with self-perceived burden among colorectal cancer patients and their caregivers: A qualitative study

Abstract

Purpose

Self-perceived burden can take a toll on the physical and psychological well-being of cancer couples and prevent them from achieving favorable outcomes. There is limited qualitative research synthesizing the cognition and coping with self-perceived burden among Chinese colorectal cancer patients and their caregivers. Therefore, this study examined perceptions of self-perceived burden and coping strategies from the perspectives of colorectal cancer patients, their spousal caregivers and nursing staff.

Methods

A qualitative study based on semi-structured interviews was implemented from May 15 to July 14, 2023. Data were analyzed using inductive thematic analysis.

Results

This study summarized the cognition and coping strategies regarding self-perceived burden through three themes. Life under self-perceived burden contained sub-themes of Uncomfortable role changing, The handling of interpersonal relationships and Communication attitudes. What need to cope with contained sub-themes of Physical changes and discomfort, Negative emotions, Inappropriate decision-making and Negative communication. Coping with different perspectives contained sub-themes of Improving self-care ability correctly, Maintaining emotional stability, Finding new meaning and Solid family support.

Conclusions

The presence of self-perceived burden hinders good outcomes for colorectal cancer couples. It is necessary to help colorectal cancer couples cope with self-perceived burden together. Nursing staff need to be a bridge of communication and exchange for colorectal cancer couples, providing them with effective and reliable information and support, thus helping colorectal cancer patients and their spousal caregivers achieve true inner peace and better outcomes.