Elise Van Laere, Leen Oris, Korneel Schepers, Janne Vanderhaegen, Sara Campens, Philip Moons, Robert Hilbrands, Koen Luyckx
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引用次数: 0
Abstract
Background: Youth with type 1 diabetes (T1D) are tasked with integrating their illness into their identity, a process conceptualized as illness identity. To date, longitudinal person-centered studies are lacking that substantiate qualitative research capturing illness identity as a process.
Purpose: First, the current study examined patterns of stability and change among illness identity profiles in youth with T1D. Second, the study investigated how these profiles and patterns are related to background and medical characteristics, psychological, and contextual variables.
Methods: This 4-wave longitudinal study (covering 3 years) included 558 adolescents and emerging adults with T1D at baseline recruited from the Belgian Diabetes Registry (age range = 14-26 years, 54% female). Latent transition analysis was used to examine (1) illness identity profiles and (2) patterns of stability and change among these profiles. Multinomial logistic regression models examined the profiles' and patterns' associations with the background and medical characteristics, psychological, and contextual variables.
Results: Three illness identity profiles emerged: the more-integrated profile, the less-integrated profile, and the least-integrated profile. Although most individuals remained within their profile across 3 years, several meaningful transitions occurred as well. Age, self-esteem, diabetes distress, and psychological control were related to profile membership, whereas only illness duration was related to transitional patterns.
Conclusion: The present study informed both theory and clinical practice on how illness identity is experienced by youth with T1D from a person-centered perspective. In addition, the results provided insight into which aspects are meaningfully related to illness identity integration, supporting tailored interventions for youth with T1D.
期刊介绍：
Annals of Behavioral Medicine aims to foster the exchange of knowledge derived from the disciplines involved in the field of behavioral medicine, and the integration of biological, psychosocial, and behavioral factors and principles as they relate to such areas as health promotion, disease prevention, risk factor modification, disease progression, adjustment and adaptation to physical disorders, and rehabilitation. To achieve these goals, much of the journal is devoted to the publication of original empirical articles including reports of randomized controlled trials, observational studies, or other basic and clinical investigations. Integrative reviews of the evidence for the application of behavioral interventions in health care will also be provided. .
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