Sickle Cell Retinopathy Lost to Follow-up Study.

IF 2.3 2区医学 Q2 OPHTHALMOLOGY Retina-The Journal of Retinal and Vitreous Diseases Pub Date : 2024-12-09 DOI:10.1097/IAE.0000000000004369

Jovi C Y Wong, Meera D Sivalingam, Matthew Griffin, John Magagna, Bita Momenaei, Taku Wakabayashi, Roselind L Ni, Kristine Y Wang, Michael J Ammar, Jason Hsu, Yoshihiro Yonekawa

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Abstract

Purpose: To determine the outcomes of sickle cell retinopathy (SCR) patients who experienced at least one episode of being lost to follow-up (LTFU) compared to those who attended all appointments.

Methods: Adult SCR patients who visited Wills Eye Hospital Retina service (January 2012-December 2021) with >2 visits were reviewed for LTFU events, defined as failure to return for a follow-up appointment within 6 months of the scheduled date.

Results: One hundred and eighty-one eyes of 94 patients were included. Fifty-one patients (99 eyes) attended all appointments ("attended group") whilst 43 patients (82 eyes), or 46%, had at least one LTFU event ("LTFU group"). The mean (standard deviation, SD) LTFU duration was 470 (329) days. In the LTFU group, mean (SD) VA was significantly worse at the final visit (logMAR 0.45 (0.63), Snellen 20/56) and at the post-LTFU visit (0.36 (0.59), 20/46) compared to the pre-LTFU visit (0.3 (0.47), 20/40, p = 0.001). In the attended group, mean (SD) VA was significantly better at the final visit (0.41 (0.63), 20/51) compared to the initial visit (0.52 (0.78), 20/66, p = 0.038).

Conclusion: Patients with SCR with an LTFU event have worse visual outcomes compared to patients who attend all appointments.

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镰状细胞性视网膜病变未纳入随访研究。

目的：确定至少经历过一次失访（LTFU）的镰状细胞视网膜病变（SCR）患者与参加所有预约的患者的结局。方法：对2012年1月至2021年12月期间到威尔斯眼科医院视网膜服务中心就诊的成年SCR患者进行LTFU事件的回顾，LTFU事件定义为未能在预定日期的6个月内返回随访预约。结果：纳入94例患者181只眼。51名患者（99只眼睛）参加了所有的预约（“出席组”），43名患者（82只眼睛），或46%，至少有一次LTFU事件（“LTFU组”）。LTFU的平均（标准差，SD）持续时间为470（329）天。在LTFU组中，与LTFU前（0.3 (0.47),20/40,p = 0.001）相比，LTFU组在最后一次访问时（logMAR 0.45 (0.63), Snellen 20/56）和LTFU后访问时（0.36(0.59),20/46）的平均（SD） VA明显更差。在就诊组中，最后一次就诊的平均（SD） VA（0.41(0.63), 20/51）明显优于初次就诊（0.52 (0.78),20/66,p = 0.038）。结论：与参加所有预约的患者相比，SCR合并LTFU事件的患者视力结果更差。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Retina-The Journal of Retinal and Vitreous Diseases 医学-眼科学

CiteScore

5.70

自引率

9.10%

发文量

554

审稿时长

3-6 weeks

期刊介绍： RETINA® focuses exclusively on the growing specialty of vitreoretinal disorders. The Journal provides current information on diagnostic and therapeutic techniques. Its highly specialized and informative, peer-reviewed articles are easily applicable to clinical practice. In addition to regular reports from clinical and basic science investigators, RETINA® publishes special features including periodic review articles on pertinent topics, special articles dealing with surgical and other therapeutic techniques, and abstract cards. Issues are abundantly illustrated in vivid full color. Published 12 times per year, RETINA® is truly a “must have” publication for anyone connected to this field.