Perspectives of America's Military and Veteran Caregivers: A Qualitative Exploration.

Abstract

RAND researchers present findings from the qualitative arm of the America's Military and Veteran Caregivers: Hidden Heroes Emerging from the Shadows research project, sharing insights from interviews with U.S. military and veteran caregivers. Thirty-eight qualitative interviews were conducted between December 2023 and February 2024. In the interviewed caregivers' own words, they provided rich descriptions of their experiences, complementing the main study's survey findings with illustrative anecdotes that deepen our understanding of the challenges and joys of caregiving and elucidate opportunities to improve supportive services. Caregivers highlighted aiding care recipients with a broad array of activities of daily living and instrumental activities of daily living, often leveraging a variety of informal and formal supports. They often faced challenges, such as balancing caregiving with other priorities and commitments; managing care recipients' health-related conditions and needs; financial, emotional, and physical struggles; and difficulty accessing respite and navigating health care systems. Caregivers reflected on their identities, highlighting ways in which they are similar to and different from other caregivers; they generally said that they found caregiving to be rewarding. They also discussed the economic impacts of caregiving and pointed to opportunities for organizations to improve outreach and provision of services.