Exploring the content validity of the EQ-5D-5L and four bolt-ons (skin irritation, self-confidence, sleep, social relationships) in atopic dermatitis and chronic urticaria.

IF 3.3 3区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Quality of Life Research Pub Date : 2024-12-14 DOI:10.1007/s11136-024-03875-x
Anna-Katrine Sussex, Fanni Rencz, Millie Gaydon, Andrew Lloyd, Katy Gallop
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Abstract

Background: The objective of this study was to assess the content validity of the EQ-5D-5L and four bolt-ons: skin irritation, self-confidence, social relationships and sleep, for people with atopic dermatitis (AD) and chronic urticaria (CU).

Methods: Adults with AD or CU in the United Kingdom, with varying levels of severity, participated in either online or in-person semi-structured interviews. During the interviews, participants were first asked about the symptoms and impacts of their condition. They were then asked to complete the EQ-5D-5L and four bolt-ons using 'think-aloud' and retrospective probing. Interviews were recorded, transcribed, then analysed using content and thematic analysis.

Results: Thirty participants (N = 15 with AD; N = 15 with CU) were interviewed. Participants spontaneously reported itch (AD: 100%; CU: 93%), self-confidence (AD: 100%, CU: 47%), sleep (AD: 53%; CU: 53%), and social relationships (AD: 27%; CU: 60%). The skin irritation bolt-on was the most important or relevant dimension for 60% of AD and 73% of CU participants. For all participants, skin irritation and self-confidence bolt-ons improved the EQ-5D-5L's comprehensiveness. Social relationships was more frequently ranked as the least relevant among the other bolt-ons.

Conclusions: This study assessed the content validity of four EQ-5D-5L bolt-ons within two patient populations. Skin irritation, self-confidence and sleep bolt-ons showed good evidence of content validity for people with AD and CU, providing support for their application in other skin conditions. The value of a social relationships bolt-on was less clear. Quantitative psychometric research is recommended to further support the use of bolt-ons in CU and AD.

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探讨EQ-5D-5L与皮肤刺激、自信、睡眠、社会关系四项指标在特应性皮炎和慢性荨麻疹中的内容效度。
背景:本研究的目的是评估EQ-5D-5L和四个附加项:皮肤刺激、自信、社会关系和睡眠对特应性皮炎(AD)和慢性荨麻疹(CU)患者的内容效度。方法:英国患有AD或CU的成人,严重程度不同,参加在线或面对面的半结构化访谈。在访谈中,参与者首先被问及他们的症状和病情的影响。然后,他们被要求使用“大声思考”和回顾性探查来完成EQ-5D-5L和四个螺栓连接。访谈被记录、转录,然后使用内容和主题分析进行分析。结果:30例AD患者(N = 15);N = 15(含CU)。参与者自发报告瘙痒(AD: 100%;CU: 93%),自信(AD: 100%, CU: 47%),睡眠(AD: 53%;CU: 53%)和社会关系(AD: 27%;铜:60%)。对于60%的AD和73%的CU参与者来说,皮肤刺激是最重要或最相关的维度。对于所有的参与者来说,皮肤刺激和自信刺激提高了EQ-5D-5L的综合性。在其他附加因素中,社会关系往往被列为最不相关的。结论:本研究在两个患者群体中评估了四个EQ-5D-5L补片的内容效度。皮肤刺激、自信和睡眠刺激在AD和CU患者中显示出良好的内容效度证据,为其在其他皮肤状况中的应用提供了支持。社会关系补强的价值就不那么明确了。建议进行定量心理测量研究,以进一步支持在CU和AD中使用螺栓连接。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Quality of Life Research
Quality of Life Research 医学-公共卫生、环境卫生与职业卫生
CiteScore
6.50
自引率
8.60%
发文量
224
审稿时长
3-8 weeks
期刊介绍: Quality of Life Research is an international, multidisciplinary journal devoted to the rapid communication of original research, theoretical articles and methodological reports related to the field of quality of life, in all the health sciences. The journal also offers editorials, literature, book and software reviews, correspondence and abstracts of conferences. Quality of life has become a prominent issue in biometry, philosophy, social science, clinical medicine, health services and outcomes research. The journal''s scope reflects the wide application of quality of life assessment and research in the biological and social sciences. All original work is subject to peer review for originality, scientific quality and relevance to a broad readership. This is an official journal of the International Society of Quality of Life Research.
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