Patient-reported hope and its predicting factors in malignant and non-malignant chronic illness: a cross-sectional study.

Erna Rochmawati, Fany Riska Berliana, Helen Octavira Wisdaningrum, Anindita Paramastri
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Abstract

Background: Hope is important to patients with a life-limiting illness. Identifying factors that influence hope is important. However, little research has been undertaken to understand patient-reported hope in malignant and non-malignant chronic disease.

Aim: This research aimed to determine hope level and its influencing factors in patients with malignant and non-malignant illness in advanced stages.

Methods: A total of 155 patients with malignant and non-malignant illness participated in this cross-sectional study. Data was collected on sociodemographic, disease characteristics and measures of hope. Hope was assessed using the validated Herth Hope Index (HHI). Multiple linear regression models were used to determine associations of identified factors with the patient's level of hope. This paper adhered to the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines.

Findings: A total of 155 patients were enrolled (mean age=54.4±10.97 years, 60% female and 54.8.% were diagnosed with chronic kidney disease and the mean duration of illness was 35.61±3.192 months. Patients had an average HHI score of 35.52 (range 26-46), were in the medium range of the HHI as specified by Herth to be 24-35. Patients who were younger and had completed higher education had a higher level of hope. These variables explained a total of 11.6% of the variation in hope.

Conclusions: The level of hope was not optimal, and still needs to be improved further. Thus, nurses and other healthcare professionals should pay special attention to older patients, patients with a low-education level and support them to have a positive attitude.

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恶性和非恶性慢性病患者报告的希望及其预测因素:一项横断面研究。
背景:希望对于患有局限生命疾病的病人来说非常重要。确定影响希望的因素非常重要。目的:本研究旨在确定晚期恶性和非恶性疾病患者的希望水平及其影响因素:共有 155 名恶性和非恶性疾病患者参与了这项横断面研究。研究收集了有关社会人口学、疾病特征和希望测量的数据。希望度采用经过验证的赫氏希望指数(HHI)进行评估。多元线性回归模型用于确定已识别因素与患者希望水平之间的关联。本文遵循了加强流行病学观察性研究报告(STROBE)指南:共纳入 155 名患者(平均年龄为(54.4±10.97)岁,女性占 60%,54.8% 的患者被诊断为慢性肾脏病,平均病程为(35.61±3.192)个月。患者的 HHI 平均值为 35.52(范围为 26-46),处于 Herth 规定的 HHI 24-35 的中等范围。年轻且受过高等教育的患者希望程度较高。这些变量共解释了 11.6% 的希望水平变化:希望水平并不理想,仍需进一步提高。因此,护士和其他医护人员应特别关注年龄较大、教育程度较低的患者,支持他们树立积极的态度。
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A qualitative study on burnout and coping in palliative nurses. Assisted dying and the future of palliative care. Creutzfeldt-Jakob disease: a single institution case series. Nurses' knowledge of paediatric palliative care in a children's hospital. Patient-reported hope and its predicting factors in malignant and non-malignant chronic illness: a cross-sectional study.
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