How do autistic people, professionals, and caregivers think about the origins and environments of autism.

IF 2.5 Q1 EDUCATION, SPECIAL Autism and Developmental Language Impairments Pub Date : 2024-12-25 eCollection Date: 2024-01-01 DOI:10.1177/23969415241308428

Fabíola Hermes Chesani, Carina Nunes Bossardi, Juliana Vieira de Araujo Sandri, Pollyana Bortholazzi Gouvea, Kristien Hens

{"title":"How do autistic people, professionals, and caregivers think about the origins and environments of autism.","authors":"Fabíola Hermes Chesani, Carina Nunes Bossardi, Juliana Vieira de Araujo Sandri, Pollyana Bortholazzi Gouvea, Kristien Hens","doi":"10.1177/23969415241308428","DOIUrl":null,"url":null,"abstract":"<p><p>Understanding what people believe the causes of autism to be has implications for experiences of familial guilt and stigma. Using a qualitative approach, we investigated how Brazilian healthcare professionals, parents of young and adult autistic people and young and adult autistic people consider the origins of autism and the interaction between the biological and social environment concerning the challenges autistic people encounter. Eight health professionals who assist autistic people, five young autistic people, six family members of young autistic people, five autistic adults, and four parents of autistic adults participated in the research. After analysis, two major coding themes emerged from the interviews: (T1) Perceived origins of autism: genetic, environmental, or both, (T2) The impact of the structured family environment. Our respondents consider autism in Brazil strongly related to genetic origins and little to environmental and social origins. At the same time, the context of the structured social and family environment can influence challenges and opportunities for autistic people.</p>","PeriodicalId":36716,"journal":{"name":"Autism and Developmental Language Impairments","volume":"9 ","pages":"23969415241308428"},"PeriodicalIF":2.5000,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11683807/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Autism and Developmental Language Impairments","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/23969415241308428","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/1 0:00:00","PubModel":"eCollection","JCR":"Q1","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}

引用次数: 0

Abstract

Understanding what people believe the causes of autism to be has implications for experiences of familial guilt and stigma. Using a qualitative approach, we investigated how Brazilian healthcare professionals, parents of young and adult autistic people and young and adult autistic people consider the origins of autism and the interaction between the biological and social environment concerning the challenges autistic people encounter. Eight health professionals who assist autistic people, five young autistic people, six family members of young autistic people, five autistic adults, and four parents of autistic adults participated in the research. After analysis, two major coding themes emerged from the interviews: (T1) Perceived origins of autism: genetic, environmental, or both, (T2) The impact of the structured family environment. Our respondents consider autism in Brazil strongly related to genetic origins and little to environmental and social origins. At the same time, the context of the structured social and family environment can influence challenges and opportunities for autistic people.

查看原文

微信好友朋友圈 QQ好友复制链接

本刊更多论文

自闭症患者、专业人士和护理人员如何看待自闭症的起源和环境？

了解人们认为自闭症的原因是什么，对家庭内疚和耻辱的经历有意义。采用定性方法，我们调查了巴西的医疗保健专业人员、年轻和成年自闭症患者的父母以及年轻和成年自闭症患者如何考虑自闭症的起源以及自闭症患者遇到的挑战中生物和社会环境之间的相互作用。8名帮助自闭症患者的健康专家、5名年轻自闭症患者、6名年轻自闭症患者的家庭成员、5名自闭症成年人和4名自闭症成年人的父母参与了这项研究。经过分析，访谈中出现了两个主要的编码主题：（T1）自闭症的感知起源：遗传、环境或两者兼而有之；（T2）结构化家庭环境的影响。我们的应答者认为巴西的自闭症与遗传起源密切相关，与环境和社会起源关系不大。与此同时，结构化的社会和家庭环境会影响自闭症患者面临的挑战和机遇。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文去求助

来源期刊