Family voices from the bedside: National Audit of Care at the End of Life (England and Wales).

IF 2 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES BMJ Supportive & Palliative Care Pub Date : 2025-02-26 DOI:10.1136/spcare-2024-005287

Mary Miller

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Abstract

Introduction: The National Audit of Care at the End of Life reports the quality of care provided to people dying in hospital. This paper reports the bereavement (quality) survey data about the families' view of care provided to the patient and support provided to the family.

Methods: Anonymised summary data were retrieved from 'Key findings for patients and carers on the quality of end of life care in acute and community hospitals' reports 2019-2022 and the summary report 2018.

Results: 9089 respondents provided feedback about care received. In more than 70% of the cases, care provided to the dying person was described as good, excellent or outstanding. At least 66% of respondents reported that care provided to them was good, excellent or outstanding. At least 76% of respondents felt that staff communicated sensitively, and more than 70% felt they were happy with the level of involvement in decisions about the patient's care.

Conclusion: The voices of dying patients and those at the bedside are critical in helping understand and improve care at the end of life. Co-ordinating our ask and focusing on agreed key outcomes are important to achieve the pragmatic principle of 'one death one review'.

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来自床边的家庭声音：国家临终关怀审计（英格兰和威尔士）。

导言：国家临终关怀审计报告了向在医院死亡的人提供的护理质量。本文报告了有关家属对提供给病人的照顾和提供给家属的支持的看法的丧亲（质量）调查数据。方法：从《2019-2022年急性和社区医院患者和护理人员对临终关怀质量的关键发现》报告和《2018年总结报告》中检索匿名汇总数据。结果：9089名受访者对所接受的护理进行了反馈。在70%以上的病例中，对临终者的护理被描述为良好、优秀或出色。至少66%的受访者报告说，向他们提供的护理是好的、优秀的或杰出的。至少76%的受访者认为工作人员沟通敏感，超过70%的受访者认为他们对参与患者护理决策的程度感到满意。结论：临终病人的声音和床边的声音对于帮助理解和改善临终护理至关重要。协调我们的要求并注重商定的关键成果，对于实现“一死一审”的务实原则至关重要。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

BMJ Supportive & Palliative Care Medicine-Medicine (miscellaneous)

CiteScore

4.60

自引率

7.40%

发文量

170

期刊介绍： Published quarterly in print and continuously online, BMJ Supportive & Palliative Care aims to connect many disciplines and specialties throughout the world by providing high quality, clinically relevant research, reviews, comment, information and news of international importance. We hold an inclusive view of supportive and palliative care research and we are able to call on expertise to critique the whole range of methodologies within the subject, including those working in transitional research, clinical trials, epidemiology, behavioural sciences, ethics and health service research. Articles with relevance to clinical practice and clinical service development will be considered for publication. In an international context, many different categories of clinician and healthcare workers do clinical work associated with palliative medicine, specialist or generalist palliative care, supportive care, psychosocial-oncology and end of life care. We wish to engage many specialties, not only those traditionally associated with supportive and palliative care. We hope to extend the readership to doctors, nurses, other healthcare workers and researchers in medical and surgical specialties, including but not limited to cardiology, gastroenterology, geriatrics, neurology, oncology, paediatrics, primary care, psychiatry, psychology, renal medicine, respiratory medicine.