Specialized pediatric palliative care in Italy: where are we going? The Palliped 2022-2023 study.

IF 3.1 3区医学 Q1 PEDIATRICS Italian Journal of Pediatrics Pub Date : 2025-01-25 DOI:10.1186/s13052-025-01850-x

Franca Benini, Anna Mercante, Sara Di Nunzio, Simonetta Papa

{"title":"Specialized pediatric palliative care in Italy: where are we going? The Palliped 2022-2023 study.","authors":"Franca Benini, Anna Mercante, Sara Di Nunzio, Simonetta Papa","doi":"10.1186/s13052-025-01850-x","DOIUrl":null,"url":null,"abstract":"Background: The PalliPed project is a nationwide, observational, cross-sectional study designed with the aim of providing a constantly updated national database for the census and monitoring of specialized pediatric palliative care (PPC) activities in Italy. This paper presents the results of the first monitoring phase of the PalliPed project, which was developed through the PalliPed 2022-2023 study, to update current knowledge on the provision of specialized PPC services in Italy.Methods: Italian specialized PPC centers/facilities were invited to participate and asked to complete a self-reporting, ad-hoc, online survey regarding their clinical activity in 2022-2023, in the revision of the data initially collected in the first PalliPed study of 2021.Results: 18 specialized PPC centers/facilities from 14 Italian regions and two autonomous provinces participated; 13 were identified as regional referral centers (72.2%), with the acquisition of three new centers in comparison to 2021. Full coverage of the regional territory was reported by 54% of them, compared with 45% in 2021, while a 24/7 service was offered by 23%, compared with 27% in 2021. Eight of 13 referral centers (61%) had a dedicated team, compared with 91% in 2021. Also, an overall increase in the number of followed patients was observed, rising from 1,209 (2019) to 2,734 (2023). In line with previous data, most PPC healthcare providers were nurses (n = 181) and physicians (n = 89), with an overall increased number of PPC providers from 2021.Conclusions: The nationwide PalliPed project established the first comprehensive overview and monitoring of the state of specialized PPC in Italy. Data reported within the PalliPed 2022-2023 monitoring study suggest a general improving trend in the availability of the specialized PPC service in Italy, compared with data collected in 2021. At the same time, the need for a greater effort to provide better care models and resources for specialized PPC remains, especially considering that the number of children needing PPC is constantly increasing.","PeriodicalId":14511,"journal":{"name":"Italian Journal of Pediatrics","volume":"51 1","pages":"15"},"PeriodicalIF":3.1000,"publicationDate":"2025-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11763133/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Italian Journal of Pediatrics","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s13052-025-01850-x","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PEDIATRICS","Score":null,"Total":0}

引用次数: 0

Abstract

Background: The PalliPed project is a nationwide, observational, cross-sectional study designed with the aim of providing a constantly updated national database for the census and monitoring of specialized pediatric palliative care (PPC) activities in Italy. This paper presents the results of the first monitoring phase of the PalliPed project, which was developed through the PalliPed 2022-2023 study, to update current knowledge on the provision of specialized PPC services in Italy.

Methods: Italian specialized PPC centers/facilities were invited to participate and asked to complete a self-reporting, ad-hoc, online survey regarding their clinical activity in 2022-2023, in the revision of the data initially collected in the first PalliPed study of 2021.

Results: 18 specialized PPC centers/facilities from 14 Italian regions and two autonomous provinces participated; 13 were identified as regional referral centers (72.2%), with the acquisition of three new centers in comparison to 2021. Full coverage of the regional territory was reported by 54% of them, compared with 45% in 2021, while a 24/7 service was offered by 23%, compared with 27% in 2021. Eight of 13 referral centers (61%) had a dedicated team, compared with 91% in 2021. Also, an overall increase in the number of followed patients was observed, rising from 1,209 (2019) to 2,734 (2023). In line with previous data, most PPC healthcare providers were nurses (n = 181) and physicians (n = 89), with an overall increased number of PPC providers from 2021.

Conclusions: The nationwide PalliPed project established the first comprehensive overview and monitoring of the state of specialized PPC in Italy. Data reported within the PalliPed 2022-2023 monitoring study suggest a general improving trend in the availability of the specialized PPC service in Italy, compared with data collected in 2021. At the same time, the need for a greater effort to provide better care models and resources for specialized PPC remains, especially considering that the number of children needing PPC is constantly increasing.

Abstract Image

查看原文

微信好友朋友圈 QQ好友复制链接

本刊更多论文

意大利专科儿科姑息治疗：我们将走向何方？Palliped 2022-2023研究。

背景：PalliPed项目是一项全国性的观察性横断面研究，旨在为意大利儿科专业姑息治疗（PPC）活动的普查和监测提供一个不断更新的国家数据库。本文介绍了PalliPed项目第一监测阶段的结果，该项目是通过PalliPed 2022-2023研究开发的，旨在更新意大利提供专业PPC服务的现有知识。方法：邀请意大利专业PPC中心/设施参与并完成一项关于其2022-2023年临床活动的自我报告，临时在线调查，以修订2021年第一次PalliPed研究中最初收集的数据。结果：来自意大利14个大区和2个自治省的18个专业PPC中心/设施参与；13个被确定为区域转诊中心（72.2%），与2021年相比，新收购了3个中心。其中54%的公司报告说，该地区的全面覆盖范围从2021年的45%上升到23%，提供全天候服务的公司从2021年的27%上升到23%。13个转诊中心中有8个（61%）拥有专门的团队，而2021年这一比例为91%。此外，观察到随访患者人数总体增加，从1209人（2019年）增加到2734人（2023年）。与之前的数据一致，大多数PPC医疗保健提供者是护士（n = 181）和医生（n = 89），从2021年开始，PPC提供者的总体数量有所增加。结论：全国范围内的PalliPed项目首次建立了对意大利专业PPC状况的全面概述和监测。PalliPed 2022-2023监测研究中报告的数据表明，与2021年收集的数据相比，意大利专业PPC服务的可用性总体呈改善趋势。与此同时，仍然需要作出更大努力，为专门的PPC提供更好的护理模式和资源，特别是考虑到需要PPC的儿童人数不断增加。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文去求助

来源期刊

Italian Journal of Pediatrics PEDIATRICS-

CiteScore

6.10

自引率

13.90%

发文量

192

审稿时长

6-12 weeks

期刊介绍： Italian Journal of Pediatrics is an open access peer-reviewed journal that includes all aspects of pediatric medicine. The journal also covers health service and public health research that addresses primary care issues. The journal provides a high-quality forum for pediatricians and other healthcare professionals to report and discuss up-to-the-minute research and expert reviews in the field of pediatric medicine. The journal will continue to develop the range of articles published to enable this invaluable resource to stay at the forefront of the field. Italian Journal of Pediatrics, which commenced in 1975 as Rivista Italiana di Pediatria, provides a high-quality forum for pediatricians and other healthcare professionals to report and discuss up-to-the-minute research and expert reviews in the field of pediatric medicine. The journal will continue to develop the range of articles published to enable this invaluable resource to stay at the forefront of the field.