Reviewing and Advocating for Data Disaggregation in Aging-Related Health Research: NIA Grants and Recommendations for Equity.

IF 3.2 2区医学 Q1 GERONTOLOGY Gerontologist Pub Date : 2025-03-25 DOI:10.1093/geront/gnaf013

Moroni Fernandez Cajavilca, Matthew Lee, Lan N Ðoàn

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Abstract

Federal minimum standards for collecting and reporting race and ethnicity data implicitly categorize diverse individuals into broad, monolithic categories. Despite advancements in policy and practice and calls for inclusive research, data equity remains a significant issue in aging-related health research. Racially and ethnically diverse older adults are underrepresented in health research and rarely disaggregated by ethnicity in data collection, analysis, and reporting of aging-related health outcomes. Data disaggregation offers a promising approach to advancing data equity in aging research. We searched the National Institute on Health RePORT Expenditures and Results (NIH RePORTER) database to identify extramural National Institute on Aging (NIA) grants from 1985 to 2024 that proposed disaggregating race and ethnicity data for aging-related research. We found only 12 NIA-funded awards, visually demonstrating how understudied data disaggregation is within the field of aging. Most disaggregation-focused grants were awarded from 2015 onward (92%), with 42% being R01 grants. Enhancing methodological rigor in demographic data collection and reporting reflective of the diversifying aging population is crucial for data equity. We conclude with recommendations to advance aging health research and highlight considerations and ethical issues for data disaggregation for historically surveilled racial and ethnic minoritized communities.

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审查并倡导与老龄化相关的健康研究中的数据分类：NIA 补助金和公平性建议。

联邦收集和报告种族和民族数据的最低标准隐含地将不同的个人划分为广泛而单一的类别。尽管在政策和实践方面取得了进展，并呼吁开展包容性研究，但数据公平仍然是与老龄化有关的健康研究中的一个重大问题。种族和族裔多样化的老年人在健康研究中的代表性不足，在数据收集、分析和老龄化相关健康结果报告中也很少按种族分类。数据分解为促进老龄化研究中的数据公平提供了一种有前途的方法。我们检索了美国国立卫生研究院报告支出和结果（NIH RePORTER）数据库，以确定1985年至2024年美国国立老龄化研究所（NIA）的校外资助，这些资助建议将种族和民族数据分类用于老龄化相关研究。我们只发现了12个由nia资助的奖项，这直观地表明，在老龄化领域，数据分解是如何被充分研究的。大多数以分类为重点的赠款是在2015年以后发放的（92%），其中42%是R01赠款。提高反映老龄化人口多样化的人口数据收集和报告方法的严谨性对数据公平至关重要。最后，我们提出了推进老龄化健康研究的建议，并强调了历史上监测的种族和少数民族社区数据分类的考虑因素和伦理问题。

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来源期刊

Gerontologist GERONTOLOGY-

CiteScore

11.00

自引率

8.80%

发文量

171

期刊介绍： The Gerontologist, published since 1961, is a bimonthly journal of The Gerontological Society of America that provides a multidisciplinary perspective on human aging by publishing research and analysis on applied social issues. It informs the broad community of disciplines and professions involved in understanding the aging process and providing care to older people. Articles should include a conceptual framework and testable hypotheses. Implications for policy or practice should be highlighted. The Gerontologist publishes quantitative and qualitative research and encourages manuscript submissions of various types including: research articles, intervention research, review articles, measurement articles, forums, and brief reports. Book and media reviews, International Spotlights, and award-winning lectures are commissioned by the editors.