The citizen perspective on challenges and rehabilitation needs among individuals treated for head and neck cancer: a qualitative study.

Abstract

Purpose: In Denmark, the prevalence of head and neck cancer is approximately 17.000, and the incidence is increasing. The disease and treatment of this condition may lead to severe physical, psychological, and social consequences. However, the literature indicates a lack of rehabilitation services and insufficient professional resources in the municipal setting resulting in unmet rehabilitation needs. The aim of this study is to gain an understanding of the challenges and rehabilitation needs experienced by citizens treated for head and neck cancer.

Methods: A qualitative study using semi-structured interviews was employed. Paul Ricoeur's interpretation theory was used to analyze the data.

Findings: Citizens treated for head and neck cancer experience the need for targeted assistance to manage the consequences following treatment for head and neck cancer and the need for adequate information and specialized professional competencies in municipal rehabilitation. The findings highlight a dual need: support from healthcare professionals and opportunities for patients to connect with others who have undergone treatment for head and neck cancer, as part of municipal rehabilitation.

Conclusion: The study contributes to an understanding of the citizen perspective on rehabilitation needs and informs and enhances knowledge about municipal rehabilitation interventions for citizens treated for head and neck cancer. However, the findings also indicate the complexity of the referral process, highlighting the need for further research on barriers and facilitators to referral and access to municipal rehabilitation.