{"title":"Being a \"Lay Expert\": A Choice for Chinese Parents of Young Autistic Children.","authors":"Yumin Zhang, Junting Chen, Xiaoyan Li","doi":"10.1352/1934-9556-63.1.1","DOIUrl":null,"url":null,"abstract":"<p><p>The lack of rehabilitation teachers for autistic children is common in lower-middle income countries. Designing programs to train parents to become \"para-rehabilitators,\" that is, \"lay experts,\" is one of the ways to solve this problem. The purpose of this study was to explore the feelings, problems, and hopes of Chinese parents participating in the parent-implemented rehabilitation model. Semi-structured qualitative interviews with 19 parents of autistic children were conducted and analyzed thematically. The study found positive changes in the parental understanding of and response to autism disorders, suggesting that training parents to become para-rehabilitators to address the shortage of rehabilitators is useful, and that improvements in training methods are needed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"63 1","pages":"1-13"},"PeriodicalIF":1.6000,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Intellectual and Developmental Disabilities","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1352/1934-9556-63.1.1","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}
引用次数: 0
Abstract
The lack of rehabilitation teachers for autistic children is common in lower-middle income countries. Designing programs to train parents to become "para-rehabilitators," that is, "lay experts," is one of the ways to solve this problem. The purpose of this study was to explore the feelings, problems, and hopes of Chinese parents participating in the parent-implemented rehabilitation model. Semi-structured qualitative interviews with 19 parents of autistic children were conducted and analyzed thematically. The study found positive changes in the parental understanding of and response to autism disorders, suggesting that training parents to become para-rehabilitators to address the shortage of rehabilitators is useful, and that improvements in training methods are needed.
期刊介绍：
Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.
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