United by Unique: A call for people-centred cancer care on World Cancer Day 2025

IF 4.7 2区 医学 Q1 ONCOLOGY International Journal of Cancer Pub Date : 2025-01-30 DOI:10.1002/ijc.35357
Cary Adams
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It helps ensure that people receive the care that <i>they</i> need when they need it.</p><p>This year and for the next 2 years, UICC's new theme for World Cancer Day on 4 February, ‘United by Unique’,1 will focus on highlighting the connection between these unique experiences and life situations of individuals, and the health systems required to deliver tailored care to address them.</p><p>With the United by Unique campaign, UICC calls for a fundamental shift in the delivery of cancer services toward a people-centred approach, where health systems place individuals and communities at the heart of healthcare decisions. This approach should lead to improved patient well-being, higher quality care, greater quality of life, and increased trust and satisfaction in healthcare providers.2 People living with cancer feel seen, heard, and empowered.</p><p>People-centred care includes initiatives such as community health programmes tailored to local contexts, cultural competence training for healthcare providers, health literacy initiatives, telemedicine services, patient navigation programmes, and the engagement of people who have experienced cancer in the planning and delivery of cancer programmes and policies.</p><p>Adopting people-centred care integrated into universal health benefits schemes and national cancer control plans should also help improve health equity by addressing some of the barriers that many people face in accessing care, both in low- countries and high-income countries: health literacy, late diagnosis, lack of treatment options, financial hardship, living far from cancer centres, and stigma and discrimination due to ethnicity, gender or sexual orientation.3</p><p>To address these disparities effectively, it is important to understand the unique challenges faced by different communities and understanding the specific cultural, economic, and systemic barriers that they face. Initiatives that actively involve community members in planning and implementing solutions, such as lung cancer screening services in New Zealand co-designed with Māori communities,4 are part of a people-centred approach to healthcare can help overcome these barriers.</p><p>The ‘United by Unique’ campaign aims to highlight barriers and gaps in health systems as well as existing best practices in delivering people-centred care. Witness accounts can be found on the World Cancer Day website, such as the story of Kristin from Norway, who felt overwhelmed and vulnerable after being diagnosed with central nervous system lymphoma, and encountering different doctors at each visit. Or that of Sukanti from India, who noticed a lack of structured support systems for caregivers when his wife Soma was diagnosed with cancer at age 41 and was given 6 months to live.</p><p>As we mark World Cancer Day, I urge policymakers, healthcare professionals, and advocates to embrace the principles of people-centred care and encourage people living with cancer, their families, and caregivers to speak out and share their experiences.</p><p>Everyone is invited to share their story on the World Cancer Day website, participate in the Upside-Down Challenge on social media by posting a picture or video upside down and saying how cancer has turned their world upside down, or create an event to raise awareness about cancer risks, prevention, screening, early detection, and treatment.</p><p>Every cancer patient's story is unique, but we can unite in a shared ambition to see governments implement policies to improve cancer prevention and deliver health systems that provide more compassionate and effective cancer care, resulting in more people surviving their cancer and leading longer and healthier lives.</p>","PeriodicalId":180,"journal":{"name":"International Journal of Cancer","volume":"156 10","pages":"1847"},"PeriodicalIF":4.7000,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/ijc.35357","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Cancer","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1002/ijc.35357","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"ONCOLOGY","Score":null,"Total":0}
引用次数: 0

Abstract

Cancer is more than just a medical diagnosis. Each person's journey with cancer is unique, shaped by their socioeconomic background, their cultural context, their values and preferences, their age, gender, and health.

Health systems need to take these differences and individuals' unique situations into account to deliver care that not only meets medical needs but also addresses the emotional, social, and practical challenges that come with a cancer diagnosis. It helps ensure that people receive the care that they need when they need it.

This year and for the next 2 years, UICC's new theme for World Cancer Day on 4 February, ‘United by Unique’,1 will focus on highlighting the connection between these unique experiences and life situations of individuals, and the health systems required to deliver tailored care to address them.

With the United by Unique campaign, UICC calls for a fundamental shift in the delivery of cancer services toward a people-centred approach, where health systems place individuals and communities at the heart of healthcare decisions. This approach should lead to improved patient well-being, higher quality care, greater quality of life, and increased trust and satisfaction in healthcare providers.2 People living with cancer feel seen, heard, and empowered.

People-centred care includes initiatives such as community health programmes tailored to local contexts, cultural competence training for healthcare providers, health literacy initiatives, telemedicine services, patient navigation programmes, and the engagement of people who have experienced cancer in the planning and delivery of cancer programmes and policies.

Adopting people-centred care integrated into universal health benefits schemes and national cancer control plans should also help improve health equity by addressing some of the barriers that many people face in accessing care, both in low- countries and high-income countries: health literacy, late diagnosis, lack of treatment options, financial hardship, living far from cancer centres, and stigma and discrimination due to ethnicity, gender or sexual orientation.3

To address these disparities effectively, it is important to understand the unique challenges faced by different communities and understanding the specific cultural, economic, and systemic barriers that they face. Initiatives that actively involve community members in planning and implementing solutions, such as lung cancer screening services in New Zealand co-designed with Māori communities,4 are part of a people-centred approach to healthcare can help overcome these barriers.

The ‘United by Unique’ campaign aims to highlight barriers and gaps in health systems as well as existing best practices in delivering people-centred care. Witness accounts can be found on the World Cancer Day website, such as the story of Kristin from Norway, who felt overwhelmed and vulnerable after being diagnosed with central nervous system lymphoma, and encountering different doctors at each visit. Or that of Sukanti from India, who noticed a lack of structured support systems for caregivers when his wife Soma was diagnosed with cancer at age 41 and was given 6 months to live.

As we mark World Cancer Day, I urge policymakers, healthcare professionals, and advocates to embrace the principles of people-centred care and encourage people living with cancer, their families, and caregivers to speak out and share their experiences.

Everyone is invited to share their story on the World Cancer Day website, participate in the Upside-Down Challenge on social media by posting a picture or video upside down and saying how cancer has turned their world upside down, or create an event to raise awareness about cancer risks, prevention, screening, early detection, and treatment.

Every cancer patient's story is unique, but we can unite in a shared ambition to see governments implement policies to improve cancer prevention and deliver health systems that provide more compassionate and effective cancer care, resulting in more people surviving their cancer and leading longer and healthier lives.

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独一无二的团结:在2025年世界癌症日呼吁以人为本的癌症护理。
癌症不仅仅是一种医学诊断。每个人的癌症之旅都是独一无二的,取决于他们的社会经济背景、文化背景、价值观和偏好、年龄、性别和健康状况。卫生系统需要考虑到这些差异和个人的独特情况,以提供不仅满足医疗需求,而且解决癌症诊断带来的情感、社会和实际挑战的护理。它有助于确保人们在需要的时候得到所需的护理。今年和未来两年,国际癌症联盟为2月4日世界癌症日设定的新主题“独一无二,团结一致”1将重点强调这些独特经历和个人生活状况之间的联系,以及为解决这些问题提供量身定制的护理所需的卫生系统。通过“独一无二的团结”运动,UICC呼吁在提供癌症服务方面进行根本性转变,转向以人为本的方法,即卫生系统将个人和社区置于卫生保健决策的核心位置。这种方法可以改善患者的健康状况,提高护理质量,提高生活质量,增加对医疗保健提供者的信任和满意度癌症患者感觉自己被人关注、被人倾听、被赋予了力量。以人为本的护理包括适合当地情况的社区卫生方案、对保健提供者的文化能力培训、卫生扫盲倡议、远程医疗服务、病人导航方案以及让癌症患者参与癌症方案和政策的规划和实施等举措。通过将以人为本的护理纳入全民健康福利计划和国家癌症控制计划,还应有助于改善卫生公平,解决低收入国家和高收入国家许多人在获得护理方面面临的一些障碍:卫生知识普及、诊断晚、缺乏治疗选择、经济困难、远离癌症中心、以及由于种族、性别或性取向而产生的耻辱和歧视。为了有效地解决这些差异,重要的是要了解不同社区所面临的独特挑战,并了解他们所面临的特定文化、经济和系统障碍。积极让社区成员参与规划和实施解决办法的举措,例如在新西兰与Māori社区共同设计的肺癌筛查服务4,是以人为本的保健方法的一部分,有助于克服这些障碍。“独一无二的团结”运动旨在突出卫生系统中的障碍和差距,以及在提供以人为本的护理方面的现有最佳做法。在世界癌症日的网站上可以找到目击者的描述,比如来自挪威的克里斯汀的故事,她在被诊断出患有中枢神经系统淋巴瘤后感到不知所措和脆弱,每次就诊都要遇到不同的医生。还有来自印度的苏坎蒂(Sukanti),当他的妻子索马(Soma)在41岁时被诊断出患有癌症,只剩下6个月的生命时,他注意到照顾者缺乏结构化的支持系统。在纪念世界癌症日之际,我敦促政策制定者、卫生保健专业人员和倡导者接受以人为本的护理原则,并鼓励癌症患者、他们的家人和护理人员大声疾言,分享他们的经验。每个人都被邀请在世界癌症日网站上分享他们的故事,在社交媒体上参与颠倒挑战,通过上传倒挂的图片或视频,说出癌症如何颠覆了他们的世界,或者创建一个活动来提高人们对癌症风险、预防、筛查、早期发现和治疗的认识。每个癌症患者的故事都是独特的,但我们可以团结起来,实现共同的目标,即看到政府实施政策,改善癌症预防,并提供提供更富有同情心和更有效的癌症护理的卫生系统,从而使更多的人从癌症中幸存下来,过上更长寿、更健康的生活。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
13.40
自引率
3.10%
发文量
460
审稿时长
2 months
期刊介绍: The International Journal of Cancer (IJC) is the official journal of the Union for International Cancer Control—UICC; it appears twice a month. IJC invites submission of manuscripts under a broad scope of topics relevant to experimental and clinical cancer research and publishes original Research Articles and Short Reports under the following categories: -Cancer Epidemiology- Cancer Genetics and Epigenetics- Infectious Causes of Cancer- Innovative Tools and Methods- Molecular Cancer Biology- Tumor Immunology and Microenvironment- Tumor Markers and Signatures- Cancer Therapy and Prevention
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