Social inclusion of families of children with Zika syndrome in light of Betty Neuman.

Abstract

Objective: To identify the stressors and reactions related to the knowledge and experiences of families of children with congenital Zika virus syndrome on social inclusion in light of Betty Neuman.

Method: Qualitative research, carried out in a hospital institution with nine mothers of children with Congenital Zika Syndrome. The data were collected between November and December 2020, from semi-structured interviews, and analyzed with the help of the IRAMUTEQ software and the manifest content analysis framework.

Results: The analyses revealed three categories: Activities outside the home, highlighting the daily challenges faced outside the home, such as the lack of support in the educational system; Difficulties in adaptation, which highlighted physical and social barriers, such as the inadequacy of public spaces and the lack of social empathy; Knowledge about rights and inclusion, showing the lack of knowledge and uncertainty of families about their rights and social inclusion.

Final considerations: The experiences and knowledge revealed the need for social interaction, adaptation, facing prejudice, seeking validity of rights and leading role in the context of social inclusion of these families.