Camp Wonder Provides Short-Term Health-Related Quality of Life Benefits for Participants With Chronic Skin Disease.

IF 1.2 4区 医学 Q3 DERMATOLOGY Pediatric Dermatology Pub Date : 2025-03-01 Epub Date: 2025-02-05 DOI:10.1111/pde.15896
Mani K Woodward, Rishi Seshadri, Thatcher Healy, Sabra Leitenberger, Julie Dhossche
{"title":"Camp Wonder Provides Short-Term Health-Related Quality of Life Benefits for Participants With Chronic Skin Disease.","authors":"Mani K Woodward, Rishi Seshadri, Thatcher Healy, Sabra Leitenberger, Julie Dhossche","doi":"10.1111/pde.15896","DOIUrl":null,"url":null,"abstract":"<p><strong>Introduction: </strong>Chronic skin diseases in children can significantly impair their quality of life (QOL) due to physical discomfort and psychosocial challenges. Disease-focused summer camps, like Camp Wonder (CW), offer a supportive environment for children to engage in activities and build friendships, potentially improving their QOL.</p><p><strong>Methods: </strong>This prospective cohort study evaluated the short-term QOL benefits of CW as measured by the Children's Dermatology Life Quality Index (CDLQI). Data were collected from 58 camp participants aged 8-17 years. The CDLQI was administered on the first and last days of CW. The paired sample t-test was used to compare pre-camp and post-camp CDLQI scores. A multiple linear regression analysis examined predictors of QOL improvement, including age, diagnosis category, sex, and initial CDLQI severity.</p><p><strong>Results: </strong>CW participants showed significant improvements in total CDLQI scores (mean change = -3.8 points, p < 0.0001) and in all constituent domains. Participants with \"very large\" initial QOL impacts experienced an average reduction of 8.4 points, while those with \"extremely large\" impacts had a reduction of 15.3 points relative to the reference group. Age, sex, and diagnosis were not significant predictors of QOL changes.</p><p><strong>Conclusion: </strong>CW provides significant short-term QOL benefits, particularly for children with severe impairments due to chronic skin disease. These findings suggest that summer camp experiences may be useful as part of a comprehensive care strategy, especially for pediatric patients with severe QOL impacts.</p>","PeriodicalId":19819,"journal":{"name":"Pediatric Dermatology","volume":" ","pages":"240-244"},"PeriodicalIF":1.2000,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Pediatric Dermatology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/pde.15896","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/2/5 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"DERMATOLOGY","Score":null,"Total":0}
引用次数: 0

Abstract

Introduction: Chronic skin diseases in children can significantly impair their quality of life (QOL) due to physical discomfort and psychosocial challenges. Disease-focused summer camps, like Camp Wonder (CW), offer a supportive environment for children to engage in activities and build friendships, potentially improving their QOL.

Methods: This prospective cohort study evaluated the short-term QOL benefits of CW as measured by the Children's Dermatology Life Quality Index (CDLQI). Data were collected from 58 camp participants aged 8-17 years. The CDLQI was administered on the first and last days of CW. The paired sample t-test was used to compare pre-camp and post-camp CDLQI scores. A multiple linear regression analysis examined predictors of QOL improvement, including age, diagnosis category, sex, and initial CDLQI severity.

Results: CW participants showed significant improvements in total CDLQI scores (mean change = -3.8 points, p < 0.0001) and in all constituent domains. Participants with "very large" initial QOL impacts experienced an average reduction of 8.4 points, while those with "extremely large" impacts had a reduction of 15.3 points relative to the reference group. Age, sex, and diagnosis were not significant predictors of QOL changes.

Conclusion: CW provides significant short-term QOL benefits, particularly for children with severe impairments due to chronic skin disease. These findings suggest that summer camp experiences may be useful as part of a comprehensive care strategy, especially for pediatric patients with severe QOL impacts.

查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
奇迹营为患有慢性皮肤病的参与者提供短期健康相关的生活质量益处。
儿童慢性皮肤病会因身体不适和心理挑战而严重影响其生活质量。以疾病为重点的夏令营,如奇迹营(CW),为孩子们参与活动和建立友谊提供了一个支持性的环境,可能会改善他们的生活质量。方法:本前瞻性队列研究通过儿童皮肤病生活质量指数(CDLQI)评估CW的短期生活质量。数据来自58名8-17岁的夏令营参与者。CDLQI分别于连续化疗的第一天和最后一天给予。采用配对样本t检验比较训练营前和训练营后的CDLQI得分。多元线性回归分析检查了生活质量改善的预测因素,包括年龄、诊断类别、性别和初始CDLQI严重程度。结果:连续治疗参与者的CDLQI总分有显著改善(平均变化= -3.8分,p)。结论:连续治疗提供了显著的短期生活质量改善,特别是对于因慢性皮肤病而严重受损的儿童。这些研究结果表明,夏令营经历可能是有用的,作为综合护理策略的一部分,特别是对生活质量受到严重影响的儿科患者。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
Pediatric Dermatology
Pediatric Dermatology 医学-皮肤病学
CiteScore
3.20
自引率
6.70%
发文量
269
审稿时长
1 months
期刊介绍: Pediatric Dermatology answers the need for new ideas and strategies for today''s pediatrician or dermatologist. As a teaching vehicle, the Journal is still unsurpassed and it will continue to present the latest on topics such as hemangiomas, atopic dermatitis, rare and unusual presentations of childhood diseases, neonatal medicine, and therapeutic advances. As important progress is made in any area involving infants and children, Pediatric Dermatology is there to publish the findings.
期刊最新文献
Impact of Pediatric Psoriasis on Child and Caregiver Health-Related Quality of Life: A Systematic Review and Meta-Analysis. Multimodal Management of Ulcerated Infantile Hemangioma With Beta Blockers and Laser Therapy-A Systematic Review and Meta-Analysis. A Case of Pediatric Spitz Melanoma With a ZEB2::ALK Fusion. Hyperpigmented Scaly Plaques Over Face in a Child. Erdafitinib-Induced Flexural Calcinosis Cutis in a Pediatric Patient: A Drug-Specific Side-Effect?
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1