Nelson Shen, Iman Kassam, Jessica Kemp, Sheng Chen, Clement Ma, Daria Ilkina, Janet Guervara, Abigail Carter-Langford
{"title":"Canadians and Digital Health Data: Privacy Experiences and Perspectives.","authors":"Nelson Shen, Iman Kassam, Jessica Kemp, Sheng Chen, Clement Ma, Daria Ilkina, Janet Guervara, Abigail Carter-Langford","doi":"10.3233/SHTI250009","DOIUrl":null,"url":null,"abstract":"<p><p>Recent policy recommendations on the use of health data call for an understanding of privacy experiences and perspectives. A secondary analysis of a national survey was conducted to characterize public experiences views on digital health (n=2010). This study found that 69.8% of participants are unaware of health privacy laws yet 71.8% were confident in protecting their online privacy. These variables were significantly associated with beliefs that their privacy was adequately protected. This study reinforces the discourse that public engagement in building awareness of the law and confidence in data protection will be critical in fostering trust in health privacy safeguards.</p>","PeriodicalId":94357,"journal":{"name":"Studies in health technology and informatics","volume":"322 ","pages":"32-36"},"PeriodicalIF":0.0000,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Studies in health technology and informatics","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.3233/SHTI250009","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Recent policy recommendations on the use of health data call for an understanding of privacy experiences and perspectives. A secondary analysis of a national survey was conducted to characterize public experiences views on digital health (n=2010). This study found that 69.8% of participants are unaware of health privacy laws yet 71.8% were confident in protecting their online privacy. These variables were significantly associated with beliefs that their privacy was adequately protected. This study reinforces the discourse that public engagement in building awareness of the law and confidence in data protection will be critical in fostering trust in health privacy safeguards.
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