Marieke A. R. Bak, Daan Horbach, Alena Buyx, Stuart McLennan
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引用次数: 0
Abstract
Partnerships between public and private organizations in digital health can promote more accessible, affordable, and high-quality care, but they also raise ethical and governance challenges. We searched PubMed, EMBASE, and Web of Science, identifying 46 studies examining ethical aspects of digital health public-private partnerships (PPPs). Three key themes emerged: data privacy and consent, ensuring public benefit and access, and good governance and demonstrating trustworthiness. We provide recommendations for each theme. To foster responsible innovation, we conclude that early and contextual operationalisation of ethics guidelines in PPPs is necessary to balance respect for fundamental values with the pursuit of impactful innovation. If PPPs become more successful as a result, this contributes to reducing the research waste of failed collaborations. Further research should clarify the scope of PPPs and definition of ‘public benefit’, and we call for critical study on the ‘economization’ of digital health promoted by public and private sector organizations.
公共和私营组织在数字医疗领域的合作可以促进更容易获得、负担得起和高质量的医疗服务,但也会带来道德和治理方面的挑战。我们检索了PubMed、EMBASE和Web of Science,确定了46项关于数字卫生公私伙伴关系(ppp)伦理方面的研究。出现了三个关键主题:数据隐私和同意、确保公共利益和访问、良好治理和展示可信度。我们为每个主题提供建议。为了促进负责任的创新,我们得出结论,在公私合作伙伴关系中尽早实施道德准则是必要的,以便在尊重基本价值观与追求有影响力的创新之间取得平衡。如果公私伙伴关系因此变得更加成功,这将有助于减少失败合作造成的研究浪费。进一步的研究应该澄清公私伙伴关系的范围和“公共利益”的定义,我们呼吁对公共和私营部门组织推动的数字卫生的“经济化”进行批判性研究。
期刊介绍:
npj Digital Medicine is an online open-access journal that focuses on publishing peer-reviewed research in the field of digital medicine. The journal covers various aspects of digital medicine, including the application and implementation of digital and mobile technologies in clinical settings, virtual healthcare, and the use of artificial intelligence and informatics.
The primary goal of the journal is to support innovation and the advancement of healthcare through the integration of new digital and mobile technologies. When determining if a manuscript is suitable for publication, the journal considers four important criteria: novelty, clinical relevance, scientific rigor, and digital innovation.