Kristina Puzino Lenker, Laura L Felix, Sarah Cichy, Erik Lehman, Jeanne M Logan, Michael Murray, Jennifer L Kraschnewski
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引用次数: 0
Abstract
Background: Individuals with intellectual disabilities or autism spectrum disorder (ID/A) sometimes require supportive services from direct support professionals (DSPs). The supportive care provided to individuals with ID/A by DSPs can vary from assistance with daily living activities to navigating society. The COVID-19 pandemic not only exacerbated poor outcomes for individuals with ID/A but also for DSPs, who report experiencing burnout in the aftermath of the pandemic. DSPs are critical to providing much-needed support to individuals with ID/A.
Objective: The goal of this study is to evaluate the impact of the community resilience model on DSP burnout and neurodivergent client outcomes using the Project ECHO (Extension for Community Healthcare Outcomes) telementoring platform as a dissemination tool.
Methods: This protocol leverages community resilience theory and telementoring through the Project ECHO model to foster resilience in DSPs and their neurodiverse client population. ECHO participants' resilience behaviors will be evaluated via surveys including the Connor Davison Resilience Scale and the WHO-5 Well-Being Index. These surveys will be administered preprogram, at the end of the 8-week ECHO program, and 90 days after the ECHO program's completion. Pre-post relationships will be assessed using generalized estimating equations. The main outcomes will be self-reported changes in knowledge, self-efficacy, and resilience.
Results: All ECHO program cohorts and follow-up data collection have concluded, with 131 survey participants. The project team is currently analyzing and interpreting the data. We anticipate having all data analyzed and interpreted by February 2025.
Conclusions: DSPs provide critical services to individuals with ID/A. By providing skills in resiliency via the ECHO model, participants will be able to apply resiliency to their own professional lives while fostering resilience within their neurodiverse client base, leading to increased positive outcomes for both groups.
International registered report identifier (irrid): DERR1-10.2196/59913.
背景:患有智力障碍或自闭症谱系障碍(ID/A)的个体有时需要直接支持专业人员(dsp)的支持服务。社会服务提供者为身份证/身份证患者提供的支持性护理可以从帮助日常生活活动到帮助他们适应社会。COVID-19大流行不仅加剧了ID/A患者的不良后果,也加剧了dsp的不良后果,他们报告在大流行之后感到倦怠。dsp对于向有ID/A的个人提供急需的支持至关重要。目的:本研究的目的是利用Project ECHO (Extension for community health outcomes)远程监控平台作为传播工具,评估社区弹性模型对DSP倦怠和神经发散患者结局的影响。方法:该协议利用社区弹性理论和远程监控,通过项目ECHO模型来培养dsp及其神经多样性客户群体的弹性。ECHO参与者的弹性行为将通过康纳·戴维森弹性量表和世卫组织-5幸福指数等调查进行评估。这些调查将在项目前、8周ECHO项目结束时和ECHO项目完成后90天进行。将使用广义估计方程评估前后关系。主要结果将是自我报告的知识、自我效能和适应能力的变化。结果:所有的ECHO项目队列和随访数据收集已经结束,131名调查参与者。项目团队目前正在分析和解释数据。我们预计在2025年2月之前对所有数据进行分析和解释。结论:dsp为具有ID/A的个人提供关键服务。通过ECHO模型提供弹性技能,参与者将能够将弹性应用于他们自己的职业生活,同时在他们的神经多样性客户群中培养弹性,从而为两组带来更多的积极结果。国际注册报告标识符(irrid): DERR1-10.2196/59913。