Bryan A. Sisk, Whitney Eng, Jamie Aye, Joana Mack, Andrew Tran, Jayme Ogino, Erika Pearson, Joshua Bies, Gayle Smink, Sonal D. Shah, Lindsey Mohney, Hannah Fassel, Rachael Schulte, Vivian Y. Chang, Renae A. Tessem, Marcia Hogeling, Neeraja Swaminathan, Thomas W. McLean, Julie Blatt, Sara Alturky, Melinda Wu, Autumn Atkinson, Ahmad Al-Huniti, Gita Massey, Elissa Engel, Kiersten Ricci, Tyson Echols, Sumukh Kumar, Michael Fox, Katherine A. King
{"title":"Sociodemographic Characteristics of Patients Seen at Vascular Anomaly Centers in the United States","authors":"Bryan A. Sisk, Whitney Eng, Jamie Aye, Joana Mack, Andrew Tran, Jayme Ogino, Erika Pearson, Joshua Bies, Gayle Smink, Sonal D. Shah, Lindsey Mohney, Hannah Fassel, Rachael Schulte, Vivian Y. Chang, Renae A. Tessem, Marcia Hogeling, Neeraja Swaminathan, Thomas W. McLean, Julie Blatt, Sara Alturky, Melinda Wu, Autumn Atkinson, Ahmad Al-Huniti, Gita Massey, Elissa Engel, Kiersten Ricci, Tyson Echols, Sumukh Kumar, Michael Fox, Katherine A. King","doi":"10.1002/pbc.31661","DOIUrl":null,"url":null,"abstract":"<div>\n \n <p>Patients with vascular anomalies (VAs) require expert multidisciplinary care. No prior studies have characterized the sociodemographic characteristics across multiple VA centers. We collected data on 5783 patients receiving care at 20 VA centers between July 1, 2020 through December 31, 2022. Male patients were underrepresented compared to the state-level census data at 17/20 centers. Black and Asian patients were underrepresented at 14/20 and 12/20 centers, respectively. The median distance to the hospital was 48 miles, and median age was 12.0 years. These data suggest that race, sex, age, and distance from the hospital could impede the ability to access expert VA care.</p>\n </div>","PeriodicalId":19822,"journal":{"name":"Pediatric Blood & Cancer","volume":"72 6","pages":""},"PeriodicalIF":2.3000,"publicationDate":"2025-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Pediatric Blood & Cancer","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1002/pbc.31661","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEMATOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Patients with vascular anomalies (VAs) require expert multidisciplinary care. No prior studies have characterized the sociodemographic characteristics across multiple VA centers. We collected data on 5783 patients receiving care at 20 VA centers between July 1, 2020 through December 31, 2022. Male patients were underrepresented compared to the state-level census data at 17/20 centers. Black and Asian patients were underrepresented at 14/20 and 12/20 centers, respectively. The median distance to the hospital was 48 miles, and median age was 12.0 years. These data suggest that race, sex, age, and distance from the hospital could impede the ability to access expert VA care.
期刊介绍：
Pediatric Blood & Cancer publishes the highest quality manuscripts describing basic and clinical investigations of blood disorders and malignant diseases of childhood including diagnosis, treatment, epidemiology, etiology, biology, and molecular and clinical genetics of these diseases as they affect children, adolescents, and young adults. Pediatric Blood & Cancer will also include studies on such treatment options as hematopoietic stem cell transplantation, immunology, and gene therapy.
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