{"title":"Assessment of Pain, Quality of Life, and Impaction in Caregivers of Children with Obstetric Brachial Plexus Paralysis.","authors":"Zeynep Arikan, Eylem Tutun Yumin","doi":"10.5152/TurkArchPediatr.2025.24165","DOIUrl":null,"url":null,"abstract":"<p><p>Objective: Obstetric brachial plexus paralysis (OBPP) is a pathology that affects the individual and caregivers in many ways from the first years of life. The caregiver must also be evaluated for the correct rehabilitation program. In our study, we aimed to evaluate the pain, quality of life and impact levels of caregivers of OBPP children. Materials and Methods: A total of 102 individuals, consisting of 51 individuals with an average age of 33.5 ± 4.6 who cared for children with OBPP and 51 individuals with an average age of 32.15 ± 4.67 who cared for typically developing children, participated in the study. Participants' physical and sociodemographic information was questioned, and the World Health Organization Quality of Life Scale-Brief Version Turkishwas used to assess their quality of life. The Cornell Musculoskeletal Disorder Questionnaire was used to assess musculoskeletal pain, and the Impact on Family Scale (IFS) was used to determine the impact on family. Results: Caregivers of children with OBPP had significantly higher lower back, right upper arm, and hip disorders (P = .019, P = .021, P = .033) and financial condition, personal stress, coping, and total impact score (P = .000, P = .002, P = .000, P = .009), which are among the IFS sub-parameters. No significant difference was found in the quality of life between the groups (P = .423, P = .298, P = .625, P = .167, P = .991). Conclusion: The present study revealed that caring for a child with OBPP affected the caregiver physically and mentally. Furthermore, we think that caregivers should also be considered and evaluated in detail in the strategies related to the rehabilitation process.</p>","PeriodicalId":75267,"journal":{"name":"Turkish archives of pediatrics","volume":"60 2","pages":"141-146"},"PeriodicalIF":1.7000,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11963290/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Turkish archives of pediatrics","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.5152/TurkArchPediatr.2025.24165","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PEDIATRICS","Score":null,"Total":0}
引用次数: 0
Abstract
Objective: Obstetric brachial plexus paralysis (OBPP) is a pathology that affects the individual and caregivers in many ways from the first years of life. The caregiver must also be evaluated for the correct rehabilitation program. In our study, we aimed to evaluate the pain, quality of life and impact levels of caregivers of OBPP children. Materials and Methods: A total of 102 individuals, consisting of 51 individuals with an average age of 33.5 ± 4.6 who cared for children with OBPP and 51 individuals with an average age of 32.15 ± 4.67 who cared for typically developing children, participated in the study. Participants' physical and sociodemographic information was questioned, and the World Health Organization Quality of Life Scale-Brief Version Turkishwas used to assess their quality of life. The Cornell Musculoskeletal Disorder Questionnaire was used to assess musculoskeletal pain, and the Impact on Family Scale (IFS) was used to determine the impact on family. Results: Caregivers of children with OBPP had significantly higher lower back, right upper arm, and hip disorders (P = .019, P = .021, P = .033) and financial condition, personal stress, coping, and total impact score (P = .000, P = .002, P = .000, P = .009), which are among the IFS sub-parameters. No significant difference was found in the quality of life between the groups (P = .423, P = .298, P = .625, P = .167, P = .991). Conclusion: The present study revealed that caring for a child with OBPP affected the caregiver physically and mentally. Furthermore, we think that caregivers should also be considered and evaluated in detail in the strategies related to the rehabilitation process.
目的:产科臂丛神经麻痹(OBPP)是一种从生命最初几年就以多种方式影响个体和护理者的病理。护理人员也必须评估正确的康复计划。在我们的研究中,我们旨在评估OBPP儿童的照顾者的疼痛,生活质量和影响水平。材料与方法:共102人参与研究,其中平均年龄为33.5±4.6岁的OBPP儿童护理人员51人,平均年龄为32.15±4.67岁的正常发育儿童护理人员51人。研究人员询问了参与者的身体和社会人口统计信息,并使用世界卫生组织生活质量量表(简略版土耳其语)来评估他们的生活质量。采用康奈尔肌肉骨骼疾病问卷评估肌肉骨骼疼痛,采用家庭影响量表(IFS)确定对家庭的影响。结果:OBPP患儿照顾者的下背部、右上臂和髋关节疾病(P = 0.019, P = 0.021, P = 0.033)以及财务状况、个人压力、应对和总影响评分(P = 0.00000, P = 0.002, P = 0.00000, P = 0.009)在IFS子参数中均显著高于OBPP患儿。两组患者的生活质量差异无统计学意义(P = 0.423, P = 0.298, P = 0.625, P = 0.167, P = 0.991)。结论:本研究揭示了对OBPP患儿的照顾对照顾者身心的影响。此外,我们认为在与康复过程相关的策略中也应该考虑和详细评估照顾者。