Checklist of Paediatric Advance Care Planning: A Delphi Study

IF 3.4 3区医学 Q1 NURSING Journal of Advanced Nursing Pub Date : 2025-03-20 DOI:10.1111/jan.16913

Siyu Cai, Tianyi Yan, Ruixin Wang, Xiaoxia Peng, Xuan Zhou

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引用次数: 0

Abstract

Aim

To develop a comprehensive decision-making checklist for paediatric advance care planning tailored to the needs of terminally ill children and their families.

Design

A Delphi Study.

Methods

Underpinned by Delphi methodology, a four-phase procedure was adopted: (1) drafting items by the working group, (2) refining items based on an experts' survey, (3) further refining based on the same experts, and (4) final adaptations and approval. This study was initiated by the Paediatric Palliative Care Subspecialty Group of the Paediatrics Society of the Chinese Medical Association. The process involved 60 healthcare providers (physicians, nurses, and social workers) from 14 paediatric palliative care teams.

Results

The developed checklist included 5 topics, 24 subtopics, and 45 items. Five topics were (1) medical and nursing decision-making, (2) social support planning, (3) psychological support planning, (4) spiritual support planning, and (5) posthumous affairs planning. This checklist addresses symptom management for terminally ill children, integrating support for their psychological, social, and spiritual well-being, and addresses the care needs of their family members.

Conclusions

The study provided a paediatric advance care planning checklist derived from the expert consensus that includes key elements and items.

Implications

This checklist provides healthcare providers with a structured framework to set paediatric advance care planning and ensure that all aspects of children's well-being and their families' needs are considered. This study also lays an evidence-based foundation for the design of related documents.

Impact

This study developed a comprehensive paediatric advance care planning checklist with 5 topics, 24 subtopics, and 45 items. This study provides a comprehensive decision-making checklist for healthcare providers and families, ensuring that critical decisions are addressed timely.

Reporting Method

This article is presented in accordance with the CREDES guidelines.

Patient or Public Contribution

Limited patient and public involvement was incorporated, focusing on reviewing the initial checklist draft.

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来源期刊

Journal of Advanced Nursing 医学-护理

CiteScore

6.40

自引率

7.90%

发文量

369

审稿时长

3 months

期刊介绍： The Journal of Advanced Nursing (JAN) contributes to the advancement of evidence-based nursing, midwifery and healthcare by disseminating high quality research and scholarship of contemporary relevance and with potential to advance knowledge for practice, education, management or policy. All JAN papers are required to have a sound scientific, evidential, theoretical or philosophical base and to be critical, questioning and scholarly in approach. As an international journal, JAN promotes diversity of research and scholarship in terms of culture, paradigm and healthcare context. For JAN’s worldwide readership, authors are expected to make clear the wider international relevance of their work and to demonstrate sensitivity to cultural considerations and differences.