Privacy Protection for Open Sharing of Psychiatric and Behavioral Research Data: Ethical Considerations and Recommendations.

IF 3.5 Q3 PSYCHIATRY Alpha psychiatry Pub Date : 2025-02-28 eCollection Date: 2025-02-01 DOI:10.31083/AP38759

Yundi Zhang, Siyuan Fan, Hui Hui, Ning Zhang, Jing Li, Liping Liao, Chaofu Ke, Dan Zhang, Shihong Su, Zhiqiang Song, Yu Zhang, Qian Du, Long Liu, Lan Wang, Lijie Yang, Jia Li, Li Xu, Shiqi Xiao, Lei Shi, Xuman Xiao, Wenzhao Wang, Niuniu Sun, Qilian He, Ran Hao, Ju Wu, Zhiqiang Tian, Yanting Lou, Qiang Yao, Wai-Kit Ming, Feng Jiang, Xiaoming Zhou, Mingxu Wang, Xinying Sun, Yibo Wu

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Abstract

Data sharing within psychiatric and behavioral research represents a novel application of ethical principles in practice; however, it suffers from a dearth of practical experience and established ethical norms. In this study, we comprehensively examined the ethical considerations surrounding the acquisition, management, sharing, and utilization of such data. We graded sensitive data and suggest ethical standards for privacy protection based on varying levels of data sensitivity. The objective of this study is to foster orderly and standardized open sharing of psychiatric and behavioral research data, thereby advancing the development and progress of related academic disciplines in China. This Chinese expert consensus has been registered on the International Guide Registration platform (Registration Number: PREPARE-2024CN412).

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精神病学和行为研究数据开放共享的隐私保护：伦理考虑和建议。

精神病学和行为学研究中的数据共享是伦理原则在实践中的一种新应用；然而，它却缺乏实践经验和既定的伦理规范。在本研究中，我们全面考察了与此类数据的获取、管理、共享和利用相关的伦理因素。我们对敏感数据进行了分级，并根据不同的数据敏感度提出了隐私保护的伦理标准。本研究旨在促进精神与行为研究数据有序、规范地开放共享，从而推动中国相关学科的发展与进步。本中国专家共识已在国际指南注册平台注册（注册号：PREPARE-2024CN412）。

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Alpha psychiatry

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