Development of an Online Training Course for Government Employees to Support Families With a Child With Profound Intellectual and Multiple Disabilities

IF 1.9 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2025-03-25 DOI:10.1111/jar.70039

Siméon T. A. Lahaije, Jorien Luijkx, Aly Waninge, Annette A. J. van der Putten

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Abstract

Background

Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life.

Method

A product to support these families was developed using the method of Design Thinking, which included parents filling out three different questionnaires.

Results

It was found that parents preferred to be supported in strengthening their resilience and care capacity, specifically by improving the communication and (mutual) understanding between them and municipal government employees. An online training course for government employees was subsequently developed.

Conclusions

This study has led to the development of a product that can support families with a child with profound intellectual and multiple disabilities according to their needs and preferences. This study has also provided insights into how these parents prefer to be supported.

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开发政府雇员在线培训课程，以支持有严重智力残疾和多重残疾儿童的家庭

有严重智力残疾和多重残疾儿童的家庭必须管理其孩子普遍的支持需求，这是一项复杂的任务。通过适当的支持，我们可以确保这些家庭过上积极而有意义的生活。方法采用设计思维的方法开发了一个支持这些家庭的产品，该产品包括父母填写三份不同的问卷。结果调查发现，家长更倾向于通过加强与市政府工作人员的沟通和相互理解来增强他们的应变能力和照顾能力。随后又为政府雇员开办了网上培训课程。这项研究促成了一种产品的开发，该产品可以根据儿童的需求和偏好，为有深度智力残疾和多重残疾儿童的家庭提供支持。这项研究还提供了这些父母更喜欢被支持的方式的见解。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.