Understanding the Impact of a Cleft Camp in Aotearoa New Zealand on Sociability, Self-Esteem, and Confidence.

Abstract

ObjectiveAlthough camps have been offered previously for cleft and craniofacial conditions, few have been evaluated empirically. This study sought to determine whether a community-led camp peer support event led to improved sociability and self-esteem among camp attendees.DesignA mixed methods study was employed. Standardized measures were administered prior to camp, immediately after camp, and 2 weeks after returning home from camp. Qualitative data were collected using focus groups on the final day of camp.SettingA nationwide 3-day camp in Auckland, New Zealand, organized in partnership between the University of Canterbury and Cleft New Zealand.ParticipantsTwenty-seven people with cleft aged 10 to 18 attended the camp, of whom, 22 participated in the research study.Main Outcome MeasuresThe Rosenburg Self-Esteem Scale, Harter Sociability Scale, and Body Image Life Disengagement Questionnaire were analyzed using descriptive statistics and t tests to compare data across timepoints and to normative data. Focus group data were analyzed using conventional content analysis.ResultsMany camp participants were already well-adjusted prior to camp and therefore did not demonstrate improvements in quantitative measures over time. Contrastingly, those who scored below the norm at baseline demonstrated significant gains in self-esteem and sociability. Focus group data demonstrated that people felt less isolated, more confident, and more knowledgeable about cleft after attending camp.ConclusionsResidential camps for youth with cleft offer a valuable peer support experience and can result in measurable benefits to young people's sociability and self-esteem, alongside qualitatively reported gains. Offering cleft and craniofacial camps as part of a comprehensive youth program is indicated.