281st ENMC international workshop: 2nd ENMC workshop on exercise training in muscle diseases; towards consensus-based recommendations on exercise prescription and outcome measures. Hoofddorp, The Netherlands, 4-6 October 2024

IF 2.8 4区医学 Q2 CLINICAL NEUROLOGY Neuromuscular Disorders Pub Date : 2025-04-01 Epub Date: 2025-02-18 DOI:10.1016/j.nmd.2025.105318

Eric Lukas Voorn , Alejandro Lucia , John Vissing , 281st ENMC workshop study group

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Abstract

The 281st ENMC workshop on exercise in muscle diseases was held on October 4–6, 2024. The workshop study group included people with lived experience, healthcare professionals and researchers from different disciplines. To facilitate improved application of exercise in daily practice, this workshop aimed to reach a consensus on recommendations for exercise prescription and outcome measures. There were sessions on 1) scientific evidence on exercise prescription and current practice (based on international online surveys of people with muscle diseases and healthcare professionals), 2) outcome measures, and 3) long-term continuation of exercise. Based on the scientific evidence, survey results and group discussions during the workshop sessions, a strong consensus (all attendees agreed) was reached that personalized exercise is safe and beneficial for people with muscle diseases and is recommended. Recommendations were formulated for the frequency, intensity, time, and type of aerobic and resistance exercise, as well as potential outcome measures for future studies.

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第281届ENMC国际讲习班：第2届ENMC肌肉疾病运动训练讲习班；以共识为基础的运动处方和结果测量建议。荷兰Hoofddorp， 2024年10月4日至6日

第281届ENMC肌肉疾病运动研讨会于2024年10月4日至6日举行。讲习班研究组包括有生活经验的人、医疗保健专业人员和来自不同学科的研究人员。为了促进运动在日常实践中的应用，本次研讨会旨在就运动处方和结果测量的建议达成共识。会议内容包括：1)运动处方和当前实践的科学证据（基于对肌肉疾病患者和医疗保健专业人员的国际在线调查）；2)结果测量；3)长期持续运动。根据科学证据、调查结果和研讨会期间的小组讨论，达成了一个强有力的共识（所有与会者都同意），即个性化锻炼对肌肉疾病患者是安全有益的，是值得推荐的。对有氧和阻力运动的频率、强度、时间和类型以及未来研究的潜在结果指标提出了建议。

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来源期刊

Neuromuscular Disorders 医学-临床神经学

CiteScore

4.60

自引率

3.60%

发文量

543

审稿时长

53 days

期刊介绍： This international, multidisciplinary journal covers all aspects of neuromuscular disorders in childhood and adult life (including the muscular dystrophies, spinal muscular atrophies, hereditary neuropathies, congenital myopathies, myasthenias, myotonic syndromes, metabolic myopathies and inflammatory myopathies). The Editors welcome original articles from all areas of the field: • Clinical aspects, such as new clinical entities, case studies of interest, treatment, management and rehabilitation (including biomechanics, orthotic design and surgery). • Basic scientific studies of relevance to the clinical syndromes, including advances in the fields of molecular biology and genetics. • Studies of animal models relevant to the human diseases. The journal is aimed at a wide range of clinicians, pathologists, associated paramedical professionals and clinical and basic scientists with an interest in the study of neuromuscular disorders.