Health status and utility measurement viewed from the right brain: Experience from the rheumatic diseases

Matthew H. Liang, Celeste Robb-Nicholson
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引用次数: 8

Abstract

Questionnaires for measuring function, health status, and quality of life have been developed for the rheumatic and musculoskeletal disorders. These new measures are as valid and as reliable as traditional measures of clinical status in clinical trials and health services research and add a valuable dimension to outcome assessment. However, they have limitations for use in patient care. Questionnaires cannot determine the etiologic basis of functional disability; nor cover any one function in enough depth; nor deal with the relative nature of function; nor account for the differences in functional priorities. Questionnaires are statistical approaches and based on normative model; patient care is humanistic emphasizing differences. Nevertheless, the interaction between psychometric approaches and concerns of patient care is a necessary and desirable goal for all we seek to accomplish with clinical investigation.

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右脑视角下的健康状况与效用测量:风湿病的经验
用于测量功能、健康状况和生活质量的调查问卷已被开发用于风湿病和肌肉骨骼疾病。这些新措施与临床试验和卫生服务研究中临床状况的传统措施一样有效和可靠,并为结果评估增加了一个有价值的方面。然而,它们在病人护理中的应用有局限性。问卷调查不能确定功能性残疾的病因基础;没有足够深入地涵盖任何一个功能;也不处理功能的相对性质;也没有考虑到功能优先级的差异。问卷调查是基于规范模型的统计方法;病人护理是强调差异的人文关怀。尽管如此,心理测量方法与患者护理之间的相互作用是我们寻求完成临床研究的必要和理想目标。
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