{"title":"The impact of a person's disability on his or her sibling.","authors":"R Scelles","doi":"10.1097/00004356-199706000-00002","DOIUrl":null,"url":null,"abstract":"<p><p>The aim of this study is to determine the impact of a person's disability on the psychological, social, family and professional life of that person's siblings. The research is based on a clinical method and case studies. An analysis is made of siblings' verbalizations in different contexts and with different aims: unstructured research interviews conducted with persons who do or do not have a sibling with a disability; meetings of parents, professionals and siblings of persons with a disability; family discussion-therapy. The study demonstrates the importance of giving siblings the opportunity to express themselves, be it about their difficulty in dealing positively with their unique family situations in social and family contexts; about their feelings of shame and guilt; about the distress caused to them by their urges to identify with the sibling with a disability. If denied such opportunities, they may develop symptoms that can seriously compromise their futures.</p>","PeriodicalId":14301,"journal":{"name":"International Journal of Rehabilitation Research","volume":"20 2","pages":"129-37"},"PeriodicalIF":1.3000,"publicationDate":"1997-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/00004356-199706000-00002","citationCount":"14","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Rehabilitation Research","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/00004356-199706000-00002","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 14
Abstract
The aim of this study is to determine the impact of a person's disability on the psychological, social, family and professional life of that person's siblings. The research is based on a clinical method and case studies. An analysis is made of siblings' verbalizations in different contexts and with different aims: unstructured research interviews conducted with persons who do or do not have a sibling with a disability; meetings of parents, professionals and siblings of persons with a disability; family discussion-therapy. The study demonstrates the importance of giving siblings the opportunity to express themselves, be it about their difficulty in dealing positively with their unique family situations in social and family contexts; about their feelings of shame and guilt; about the distress caused to them by their urges to identify with the sibling with a disability. If denied such opportunities, they may develop symptoms that can seriously compromise their futures.
期刊介绍:
International Journal of Rehabilitation Research is a quarterly, peer-reviewed, interdisciplinary forum for the publication of research into functioning, disability and contextual factors experienced by persons of all ages in both developed and developing societies. The wealth of information offered makes the journal a valuable resource for researchers, practitioners, and administrators in such fields as rehabilitation medicine, outcome measurement nursing, social and vocational rehabilitation/case management, return to work, special education, social policy, social work and social welfare, sociology, psychology, psychiatry assistive technology and environmental factors/disability. Areas of interest include functioning and disablement throughout the life cycle; rehabilitation programmes for persons with physical, sensory, mental and developmental disabilities; measurement of functioning and disability; special education and vocational rehabilitation; equipment access and transportation; information technology; independent living; consumer, legal, economic and sociopolitical aspects of functioning, disability and contextual factors.