Evaluating the quality of internet-based information about alternative therapies: development of the BIOME guidelines.

Alison Cooke, Lisa Gray
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引用次数: 12

Abstract

Background: The aim of the study was to develop guidelines for evaluating the quality of Internet-based information about alternative therapies.

Method: An expert committee drafted a set of guidelines for evaluating information relating to alternative therapies. The guidelines were subsequently refined by testing them using resources already included in the BIOME databases. The first 20 unique web sites about alternative therapies for cancer retrieved using a general search engine and a United Kingdom focused search engine were then evaluated using the refined guidelines. Those undertaking the evaluations also completed a questionnaire relating to the face and content validity of the guidelines. The participants in the implementation stage were six content providers. Content providers identify, evaluate and describe resources for inclusion in the BIOME databases.

Results: Only one web site out of 20 was selected by all six content providers for inclusion in the BIOME databases according to the alternative therapies guidelines. All content providers were in agreement regarding the exclusion of nine sites, but there were discrepancies regarding the remaining 10 resources. There was general agreement that the guidelines were easy to understand and that all points raised were necessary. However, there were differences of opinion regarding whether all issues were covered, whether the guidelines allowed the selection of only the highest quality resources, and whether the guidelines were applicable to a wide range of Internet-based resources about alternative therapies.

Conclusions: The levels of inconsistencies in the results indicate the need for the further development of the BIOME guidelines for selecting information about alternative therapies.

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评估基于互联网的替代疗法信息的质量:BIOME指南的制定。
背景:本研究的目的是为评估基于互联网的替代疗法信息的质量制定指南。方法:一个专家委员会起草了一套评估替代疗法相关信息的指南。随后,通过使用生物组数据库中已经包含的资源进行测试,对准则进行了改进。使用通用搜索引擎和以英国为重点的搜索引擎检索到的前20个关于癌症替代疗法的独特网站,然后使用改进的指南进行评估。那些进行评价的人还填写了一份关于准则的表面和内容有效性的调查表。实施阶段的参与者是六个内容提供者。内容提供者识别、评估和描述要纳入BIOME数据库的资源。结果:根据替代疗法指南,所有六个内容提供商在20个网站中只有一个被选中纳入BIOME数据库。所有内容提供者都同意排除9个网站,但对其余10个资源存在差异。大家普遍同意,这些指导方针很容易理解,提出的所有要点都是必要的。然而,对于是否涵盖所有问题、指南是否只允许选择最高质量的资源,以及指南是否适用于广泛的基于互联网的替代疗法资源,意见存在分歧。结论:结果的不一致程度表明需要进一步制定BIOME指南,以选择有关替代疗法的信息。
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