Ethics of re-membering and remembering: considering disability and biotechnology.

New Zealand bioethics journal Pub Date : 2003-06-01
Jayne Clapton
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Abstract

Encompassed within forecasts offered by proponents of biotechnology about cures and control of disease and disability, are also predictions of an enhanced society. However, if the citizenship of our society is to be 're-membered' in the future with processes of elimination being employed on some potential lives deemed not worth living, deep ethical scrutiny is required. Hence, this discussion contends that when considering ethical decisions impacting upon the membership of future societies, there also exists an imperative to seek insight and wisdom by looking to past actions. The experiences and narratives of many people with disability and their families attest to some of these past actions whereby agendas of elimination have been impaired by practices founded upon both moral and socio-political exclusion. When considering 're-membering' in this context, a deliberation upon the imperative to remember will utilise the proximal text of a conference venue to contend that ethical reflection in this biotechnological era must embrace a process of anamnesis of past practices, rather than the more common approach of amnesia.

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记忆和记忆的伦理:考虑残疾和生物技术。
生物技术的支持者提供的关于疾病和残疾的治疗和控制的预测中,也包含了对一个增强的社会的预测。然而,如果我们社会的公民身份在未来被“记住”,对一些被认为不值得活下去的潜在生命采用淘汰程序,就需要进行深入的伦理审查。因此,本讨论认为,在考虑影响未来社会成员的道德决定时,也有必要通过回顾过去的行为来寻求洞察力和智慧。许多残疾人及其家庭的经历和叙述证明了过去的一些行动,在这些行动中,基于道德和社会政治排斥的做法损害了消除议程。当在这种背景下考虑“记忆”时,对记忆的必要性的审议将利用会议地点的近文本来争辩说,在这个生物技术时代,伦理反思必须包含对过去实践的记忆过程,而不是更常见的失忆方法。
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