How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?

IF 3.6 Q1 PEDIATRICS Current pediatrics reports Pub Date : 2021-01-01 Epub Date: 2021-03-12 DOI:10.1007/s40124-021-00238-9
Teresa Vente
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引用次数: 1

Abstract

Purpose of review: This paper seeks to explore the definitions of quality of life and its application to pediatric research and clinical practice. This paper also highlights some of the imperfections in evaluating patient-reported outcomes designed to measure quality of life in pediatrics. Additionally, this paper explores some of the unique challenges in promoting quality of life during the COVID-19 pandemic.

Recent findings: There are numerous different measurement scales to examine quality of life in children of different ages, and with a variety of disease states.

Summary: Despite the number of quality of life measurement tools, not every patient population has a validated measure, including patients with palliative care needs. There is no consensus on how to incorporate findings from patient-reported outcomes into clinical practice recommendations. Professional organizations offer guidance and resources for families to encourage focus on quality of life during the COVID-19 pandemic.

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当孩子不能上学或外出时,你如何关注生活质量?
综述目的:本文旨在探讨生活质量的定义及其在儿科研究和临床实践中的应用。本文还强调了一些不完善的评估病人报告的结果,旨在衡量儿科的生活质量。此外,本文还探讨了在COVID-19大流行期间提高生活质量的一些独特挑战。最近的发现:有许多不同的测量量表来检查不同年龄和不同疾病状态的儿童的生活质量。摘要:尽管有许多生活质量测量工具,但并非每个患者群体都有有效的测量方法,包括需要姑息治疗的患者。如何将患者报告的结果纳入临床实践建议尚无共识。专业组织为家庭提供指导和资源,鼓励他们在COVID-19大流行期间关注生活质量。
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