Perspectives on Social Media from Adolescents and Young Adults with Cancer.

IF 1.9 3区 医学 Q2 NURSING Journal of Pediatric Oncology Nursing Pub Date : 2021-07-01 Epub Date: 2021-03-17 DOI:10.1177/1043454221992319
Sarah R Daniels, Chia-Chen Yang, Samantha J Toohey, Victoria W Willard
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引用次数: 13

Abstract

Background: Adolescents and young adults (AYAs) with cancer use social media in unique ways throughout treatment. The purpose of this article is to describe the social media experiences of AYAs with cancer as a means of exploring the potential impact of social media on AYA psychosocial development after diagnosis and throughout cancer treatment. Methods: Seven AYAs treated for cancer, aged 15-20 years, completed a semi-structured interview regarding their social media preferences and habits. Each interview was transcribed verbatim and de-identified. Data were coded and themes were identified via latent thematic analysis. Results: Four themes emerged regarding social media experiences for AYAs with cancer: (1) changes in audience and feedback after diagnosis; (2) attitudes about body image and peer support; (3) control over personal, familial, and societal messages about illness; and (4) maintaining normalcy despite hospital stressors. Discussion: Social media appear especially useful for promoting social and identity development as AYAs undergo cancer treatment. Specifically, social media provide spaces to negotiate body image and sense of self, to manage peer relationships, to reclaim control and independence, and to maintain normalcy. Understanding these experiences will prepare healthcare providers and caregivers to assess ongoing psychosocial development and adjustment throughout cancer treatment.

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青少年和青年癌症患者对社交媒体的看法。
背景:患有癌症的青少年和年轻人(AYAs)在整个治疗过程中以独特的方式使用社交媒体。本文的目的是描述患有癌症的AYA的社交媒体体验,作为探索社交媒体对诊断后和整个癌症治疗过程中AYA心理社会发展的潜在影响的一种手段。方法:7名年龄在15-20岁的接受癌症治疗的aya完成了关于他们的社交媒体偏好和习惯的半结构化访谈。每一次采访都被逐字抄录并去识别。对数据进行编码,并通过潜在主题分析确定主题。结果:癌症aya患者的社交媒体体验呈现出四个主题:(1)诊断后受众和反馈的变化;(2)身体形象态度与同伴支持;(3)控制个人、家庭和社会关于疾病的信息;(4)在医院压力下保持正常。讨论:社交媒体似乎对促进社会和身份发展特别有用,因为青少年青少年正在接受癌症治疗。具体来说,社交媒体提供了协商身体形象和自我意识的空间,管理同伴关系,重新获得控制和独立,并保持正常。了解这些经历将使医疗保健提供者和护理人员在整个癌症治疗过程中评估持续的心理社会发展和调整。
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来源期刊
CiteScore
3.10
自引率
0.00%
发文量
0
审稿时长
>12 weeks
期刊介绍: SPECIAL PATIENTS NEED SPECIAL NURSES Caring for children with cancer is one of the most technically and emotionally difficult areas in nursing. Not only are you dealing with children and adolescents who hurt, you must reassure and educate families, balance a multitude of other health care professionals, and keep up with ever-changing nursing practice and care. To help special nurses stay aware of the newest effective nursing practices, innovative therapeutic approaches, significant information trends, and most practical research in hematology and pediatric oncology nursing, you need the Journal of Pediatric Oncology Nursing. The journal offers pediatric hematology, oncology, and immunology nurses in clinical practice and research, pediatric social workers, epidemiologists, clinical psychologists, child life specialists and nursing educators the latest peer-reviewed original research and definitive reviews on the whole spectrum of nursing care of childhood cancers, including leukemias, solid tumors and lymphomas, and hematologic disorders. JOPON covers the entire disease process--diagnosis, treatment, recovery, and survival, as well as end-of-life care. Six times a year, the Journal of Pediatric Oncology Nursing introduces new and useful nursing care practice and research from around the world that saves you time and effort. Just some of the spirited topics covered include: Cancer survivorship including later-life effects of childhood cancer, including fertility, cardiac insufficiency, and pulmonary fibrosis Combination therapies Hematologic and immunologic topics Holistic, family-centered supportive care Improvement of quality of life for children and adolescents with cancer Management of side effects from surgery, chemotherapy, and radiation Management of specific symptoms/diseases/co-infections Medication tolerance differences in children and adolescents Pain control Palliative and end of life care issues Pharmacologic agents for pediatrics/clinical trial results Psychological support for the patient, siblings, and families The dynamic articles cover a wide range of specific nursing concerns, including: Advanced practice issues Clinical issues Clinical proficiency Conducting qualitative and quantitative research Developing a core curriculum for pediatric hematology/oncology nursing Encouraging active patient participation Ethical issues Evaluating outcomes Professional development Stress management and handling your own emotions Other important features include Guest Editorials from experts in the discipline, Point/Counterpoint debates, Roadmaps (personal insights into the nursing experience), and Proceedings and Abstracts from the annual Association for Pediatric Hematology/Oncology Nurses (APHON) conference. Your special patients need special nurses--stay special by subscribing to the Journal of Pediatric Oncology Nursing today! This journal is a member of the Committee on Publication Ethics (COPE).
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