Attitudes and practices of patients and physicians towards patient autonomy: a survey conducted prior to the enactment of the Patients' Rights Bill in Israel.

B Sadan, T Chejk-Saul
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Abstract

On the surface, it would appear that patients would welcome the opportunity to relinquish their traditional subordination to doctors in therapeutic decision making, and that doctors would be pleased to have partners with whom to share the burden involved in making such fateful decisions. We investigated the attitudes and practices of patients and physicians towards "patient autonomy" in an outpatient clinic of an internal medicine department prior to the enactment of the Patient's Rights Bill in Israel. There were 81 patients randomly chosen from those attending the study clinic and 21 physicians randomly selected from among the physicians treating them. They were all administered the Krantz, the Abramson Health Index, and the Christie Ethical Decision Making pre-tested questionnaires. They were also queried on demographic and background material. The results indicated that the patient sample was neither particularly interested in participating in medical decision making (average score of 3 out of 9 in the Krantz behavioral involvement sub-scale) nor in receiving medical information (average score of 4 out of 7 in the Krantz preference of information sub-scale). The physicians exhibited a willingness to establish equal relations with their patients, and claimed to prefer their taking an active role in decision making. However, when presented with ethical dilemmas, the physicians were not consistent in their attitude in terms of respecting "patient autonomy." The findings of an Israeli survey conducted three years after the bill's passage showed that only one-third of the studied physicians had read the Israel Medical Association booklet's explaining the new law and most of them claimed that the new law had no affect on their daily encounter with patients, meaning that the law did not affect any change in these physicians' pattern of behavior. We concluded that if the Patient's Rights Bill is to achieve its goals, it will have to be accompanied by a widespread educational campaign to encourage the public to appreciate the value and the importance of the autonomy granted to them, and to guide them in exercising this autonomy to its best advantage. In parallel, the medical profession will need to be aware of the importance of achieving the therapeutic goals while upholding ethical and moral values in health care.

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病人和医生对病人自主的态度和做法:在以色列颁布《病人权利法案》之前进行的一项调查。
从表面上看,患者似乎会欢迎有机会放弃他们在治疗决策中对医生的传统从属地位,而医生也会很高兴有伴侣与他们一起分担做出这种重大决定的负担。在以色列颁布《病人权利法案》之前,我们调查了内科门诊病人和医生对“病人自主”的态度和做法。从参加研究诊所的患者中随机选择81名患者,从治疗他们的医生中随机选择21名医生。他们都接受了Krantz、艾布拉姆森健康指数和克里斯蒂道德决策预先测试问卷。他们还被询问了人口统计和背景资料。结果表明,患者样本对参与医疗决策(Krantz行为卷入子量表平均得分为3分,满分为9分)和接受医疗信息(Krantz信息偏好子量表平均得分为4分,满分为7分)都没有特别的兴趣。医生表现出与患者建立平等关系的意愿,并声称他们更愿意在决策中发挥积极作用。然而,当面临伦理困境时,医生在尊重“患者自主权”方面的态度并不一致。该法案通过三年后,以色列进行了一项调查,结果显示,只有三分之一的受访医生阅读了以色列医学协会解释新法律的小册子,其中大多数人声称新法律对他们日常接触的病人没有影响,这意味着法律没有影响这些医生的行为模式。我们的结论是,如果《病人权利法案》要实现其目标,就必须伴随着一场广泛的教育运动,以鼓励公众认识到赋予他们自主权的价值和重要性,并指导他们以最佳方式行使这种自主权。与此同时,医学界需要意识到实现治疗目标的重要性,同时在医疗保健中坚持伦理和道德价值观。
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