Ethical issues in neonatal intensive care and physicians' practices: a European perspective.

Marina Cuttini, Veronica Casotto, Marcello Orzalesi
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Abstract

Unlabelled: An international project (EURONIC) was carried out to explore the end-of-life decision-making process in a large, representative sample of neonatal intensive care units (NICUs) in eight western European countries: France, Germany, Great Britain, Italy, Luxembourg, the Netherlands, Spain and Sweden. Structured questionnaires were used to record data on NICU organization and policies, and to survey staff views and practices regarding ethical decision-making. One hundred and twenty-two NICUs were recruited by census or random sampling (response rate 86%); 1235 physicians and 3115 nurses completed the staff questionnaire (response rates 89 and 85%, respectively). This paper focuses on the physicians' answers. In all countries but Italy, most physicians reported having been involved at least once in setting limits to intensive care because of a baby's incurable condition and/or poor neurological prognosis. Adopted strategies varied between countries. Practices such as the continuation of current treatment without intensifying it and the withholding of emergency manoeuvres appeared widespread. In contrast, the frequency of doctors reporting withdrawal of mechanical ventilation was highest in the Netherlands (93%), Sweden (91%) and the Great Britain (88%), intermediate in France and Germany, and lowest in Spain and Italy (34 and 21%, respectively).

Conclusion: Ethically problematic clinical cases are approached differently in the various countries. The findings of this study may provide an opportunity for physicians to review their practices critically, in light of how other colleagues proceed, and foster an open discussion about these difficult issues.

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新生儿重症监护和医生实践中的伦理问题:欧洲视角。
未标记:一项国际项目(EURONIC)在八个西欧国家(法国、德国、英国、意大利、卢森堡、荷兰、西班牙和瑞典)的新生儿重症监护病房(nicu)中开展,以探索生命末期决策过程。使用结构化问卷记录新生儿重症监护室组织和政策的数据,并调查工作人员对道德决策的看法和做法。采用普查或随机抽样方法纳入新生儿重症监护病房122例(有效率86%);1235名医生和3115名护士完成了员工问卷(回复率分别为89%和85%)。本文主要关注医生的回答。在除意大利以外的所有国家,大多数医生报告说,由于婴儿的无法治愈的状况和/或不良的神经预后,他们至少参与过一次对重症监护的限制。各国采取的战略各不相同。诸如继续目前的治疗而不加强治疗和停止紧急演习等做法似乎很普遍。相比之下,医生报告停止机械通气的频率在荷兰(93%)、瑞典(91%)和英国(88%)最高,法国和德国居中,西班牙和意大利最低(分别为34%和21%)。结论:不同国家对伦理问题临床病例的处理方式不同。这项研究的发现可能为医生提供了一个机会,根据其他同事的做法,批判性地回顾他们的实践,并促进对这些困难问题的公开讨论。
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