Healthy choices through family history: a community approach to family history awareness.

Community genetics Pub Date : 2008-01-01 Epub Date: 2008-08-05 DOI:10.1159/000133306

Claudia Petruccio, Kenna R Mills Shaw, Joann Boughman, Carlos Fernandez, Ilana Harlow, Margaret Kruesi, Penny Kyler, Michele A Lloyd-Puryear, James O'Leary, Amy Skillman, Sharon Terry, Fredrika McKain

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引用次数: 29

Abstract

Background: The importance of family health history data in health care is widely acknowledged. Few individuals report having collected this information from their own family.

Methods: This project implemented a community-based approach to design and pilot a linguistically and culturally appropriate family health history collection toolkit for two minority populations in Harrisburg, Pa.

Results: The toolkit relied on oral traditions and family stories as a way to successfully introduce genetics education and family health history to these populations. Participants not only found the tool engaging and culturally appropriate, they were also able to obtain information that they were likely to share with their physician.

Conclusion: While limited in scope, this project provides a model to other communities for the design, pilot testing, and implementation of a community-based public health initiative regarding family health histories.

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通过家族史进行健康选择:家族史意识的社区方法。

背景:家庭健康史资料在医疗保健中的重要性已得到广泛认可。很少有人报告从他们自己的家庭收集到这些信息。方法:本项目采用基于社区的方法，为宾夕法尼亚州哈里斯堡的两个少数民族设计和试点语言和文化上合适的家庭健康史收集工具包。结果:该工具包依靠口述传统和家庭故事，成功地向这些人群介绍遗传教育和家庭健康史。参与者不仅发现这个工具很吸引人，在文化上也很合适，他们还能够获得他们可能与医生分享的信息。结论:虽然范围有限，但该项目为其他社区设计、试点测试和实施基于社区的家庭健康史公共卫生倡议提供了一个模式。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Community genetics

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