Hippocrates revisited? Old ideals and new realities.

IF 3.5 Q1 EDUCATION & EDUCATIONAL RESEARCH Genomic medicine Pub Date : 2008-01-01 Epub Date: 2008-05-14 DOI:10.1007/s11568-008-9020-2
Jeantine E Lunshof, Ruth Chadwick, George M Church
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引用次数: 21

Abstract

Individual genomics has arrived, personal decisions to make use of it are a new reality. What are the implications for the patient-physician relationship? In this article we address three factors that call the traditional concept of confidentiality into question. First, the illusion of absolute data safety, as shown by medical informatics. Second, data sharing as a standard practice in genomics research. Comprehensive data sets are widely accessible. Third, genotyping has become a service that is directly available to consumers. The availability and accessibility of personal health data strongly suggest that the roles in the clinical encounter need to be remodeled. The old ideal of physicians as keepers of confidential information is outstripped by the reality of individuals who decide themselves about the way of using their data.

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希波克拉底吗?旧的理想和新的现实。
个人基因组学已经到来,个人决定利用它是一个新的现实。这对医患关系有什么影响?在这篇文章中,我们讨论了使传统的保密概念受到质疑的三个因素。首先,数据绝对安全的错觉,正如医学信息学所显示的那样。第二,数据共享是基因组学研究的标准做法。全面的数据集可广泛获取。第三,基因分型已经成为消费者可以直接获得的一项服务。个人健康数据的可用性和可访问性强烈表明,在临床遇到的角色需要重塑。医生作为机密信息保管人的旧理想已经被个人自行决定使用数据方式的现实所超越。
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