Needs and experiences of Samoan breast cancer survivors in Southern California.

Hawaii medical journal Pub Date : 2011-11-01
Sora Park Tanjasiri, Sala Mata'alii, Marion Hanneman, Melanie D Sabado
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Abstract

Objective: Breast cancer rates are increasing among Samoan and other Pacific Islander women, yet studies of their social support needs are nearly non-existent. The purpose of this paper is to report on the cultural dimensions of social support among Samoan breast cancer survivors in Southern California.

Methods: Data for this paper came from a larger one-and-a-half year study of the social support needs of Samoan breast cancer survivors and their family and friends. In-depth, retrospective, qualitative interviews were conducted with a purposeful sample of 20 Samoan survivors who were recruited from an existing social support program as well as the general community.

Results: We documented important informational needs and behaviors, social support needs and experiences, and spirituality issues for the Samoan breast cancer survivors.

Conclusions: Our findings underscore the need for culturally-specific social support services for Samoans, as well as the necessity of community-based participatory research to define and explore social support and other survivorship needs in this understudied population. Recommendations from the community report-back, stressed the importance of expanding community Samoan cancer social support groups through collaborations with Samoan leaders and churches.

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南加州萨摩亚乳腺癌幸存者的需要和经历。
目的:萨摩亚和其他太平洋岛民妇女的乳腺癌发病率正在上升,但对她们的社会支持需求的研究几乎不存在。本文的目的是报告南加州萨摩亚乳腺癌幸存者的社会支持的文化层面。方法:本文的数据来自一项为期一年半的关于萨摩亚乳腺癌幸存者及其家人和朋友的社会支持需求的大型研究。对20名萨摩亚幸存者进行了深入、回顾性和定性访谈,这些幸存者是从现有的社会支持方案和一般社区中招募的。结果:我们记录了萨摩亚乳腺癌幸存者的重要信息需求和行为、社会支持需求和经历以及精神问题。结论:我们的研究结果强调了萨摩亚人需要特定文化的社会支持服务,以及以社区为基础的参与性研究的必要性,以定义和探索社会支持和这一未充分研究人群的其他生存需求。社区报告的建议强调了通过与萨摩亚领导人和教会合作扩大萨摩亚社区癌症社会支持团体的重要性。
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