Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda.

IF 1.1 Q4 INFECTIOUS DISEASES AIDS Research and Treatment Pub Date : 2017-01-01 Epub Date: 2017-10-25 DOI:10.1155/2017/3458684
Charles Peter Osingada, Monica Okuga, Rose Chalo Nabirye, Nelson Kaulukusi Sewankambo, Damalie Nakanjako
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Abstract

Limited data are available on the experiences of parental HIV disclosure to children in Uganda. We conducted a qualitative study comprising sixteen in-depth interviews and four focus group discussions with parents receiving highly active antiretroviral therapy. Analysis was done using Atlas.ti qualitative research software. Back-and-forth triangulation was done between transcripts of the in-depth interviews and focus group discussions, and themes and subthemes were developed. Barriers to parents' disclosure included perceptions that children are too young to understand what HIV infection means and fears of secondary disclosure by the children. Immediate outcomes of disclosure included children getting scared and crying, although such instances often gave way to more enduring positive experiences for the parents, such as support in adherence to medical care, help in household chores, and a decrease in financial demands from the children. Country-specific interventions are needed to improve the process of parental HIV disclosure to children and this should encompass preparation on how to deal with the immediate psychological challenges associated with the parent's disclosure.

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向儿童披露父母艾滋病毒状况:乌干达坎帕拉一家城市诊所成年人接受抗逆转录病毒治疗的经历。
关于乌干达父母向儿童披露艾滋病毒情况的经验数据有限。我们进行了一项定性研究,包括16次深度访谈和4次与接受高效抗逆转录病毒治疗的父母的焦点小组讨论。使用Atlas进行分析。质性研究软件。在深度访谈和焦点小组讨论的文本之间进行了来回三角测量,并制定了主题和次级主题。阻碍父母披露信息的障碍包括认为儿童还太小,不了解艾滋病毒感染意味着什么,以及害怕儿童再次披露信息。披露的直接结果包括孩子会害怕和哭泣,尽管这些情况通常会让位于对父母来说更持久的积极体验,例如支持坚持医疗护理,帮助做家务,以及孩子的经济需求减少。需要针对具体国家采取干预措施,以改进父母向儿童透露艾滋病毒情况的过程,这应包括准备如何处理与父母透露情况有关的直接心理挑战。
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来源期刊
AIDS Research and Treatment
AIDS Research and Treatment INFECTIOUS DISEASES-
CiteScore
3.10
自引率
0.00%
发文量
13
审稿时长
18 weeks
期刊介绍: AIDS Research and Treatment is a peer-reviewed, Open Access journal that publishes original research articles, review articles, and clinical studies focused on all aspects of HIV and AIDS, from the molecular basis of disease to translational and clinical research. In addition, articles relating to prevention, education, and behavior change will be considered
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