Perceived value of eHealth among people living with multimorbidity: a qualitative study.

Journal of comorbidity Pub Date : 2017-08-24 eCollection Date: 2017-01-01 DOI:10.15256/joc.2017.7.98
Sidsel M Runz-Jørgensen, Michaela L Schiøtz, Ulla Christensen
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引用次数: 23

Abstract

Background: The prevalence of multimorbidity is increasing, creating challenges for patients, healthcare professionals, and healthcare systems. Given that chronic disease management increasingly involves eHealth, it is useful to assess its perceived value among people with multimorbidity.

Objective: To explore challenges related to multimorbidity and patients' perspectives on eHealth.

Design: Ten semi-structured interviews with adults, living with multimorbidity in Copenhagen, Denmark. Interviews focused on patient-experienced challenges, from challenges related to self-management to challenges experienced in the healthcare sector, as well as perceptions of eHealth. During interviews, participants were presented with pictures of different eHealth technologies. Data analysis followed the systematic text condensation approach.

Results: Participants experienced challenges in their daily lives, e.g. when practicing self-management activities, when navigating the healthcare sector, and when interacting with healthcare professionals. Patient-perceived value of eHealth varied, depending on their burden of illness and treatment: those with a greater burden had more positive perceptions of eHealth, and expressed more intention to use it. Participants with less complex disease patterns and less burdensome treatment regimens were more likely to perceive eHealth as something worthless and undesirable. Participants stressed that eHealth should only be introduced as an optional supplement.

Conclusions: eHealth can potentially address some patient-experienced challenges related to multimorbidity by promoting self-management, patient-centeredness, and access. However, patients' needs and preferences vary and eHealth cannot substitute the personal interaction between patient and healthcare professionals. Our findings point to the importance of patient assessment and stratification to ensure appropriate use of eHealth.

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多重疾病患者对电子健康的感知价值:一项定性研究
背景:多病的患病率正在增加,给患者、卫生保健专业人员和卫生保健系统带来了挑战。鉴于慢性病管理越来越多地涉及电子健康,评估其在多病人群中的感知价值是有用的。目的:探讨与多病相关的挑战和患者对电子健康的看法。设计:对丹麦哥本哈根患有多种疾病的成年人进行了10次半结构化访谈。访谈的重点是患者经历的挑战,从与自我管理相关的挑战到医疗保健部门遇到的挑战,以及对电子保健的看法。在访谈中,参与者看到了不同电子医疗技术的图片。数据分析采用系统的文本浓缩方法。结果:参与者在日常生活中经历了挑战,例如在练习自我管理活动时,在医疗保健部门导航时,以及在与医疗保健专业人员互动时。患者对电子卫生保健的感知价值因其疾病和治疗负担的不同而有所不同:负担较重的患者对电子卫生保健的看法更为积极,并表达了更多使用电子卫生保健的意愿。疾病模式不太复杂、治疗方案负担较轻的参与者更有可能认为电子健康毫无价值和不受欢迎。与会者强调,电子保健只应作为一种可选补充。结论:电子健康可以通过促进自我管理、以患者为中心和可及性,潜在地解决与多病相关的一些患者经历的挑战。然而,患者的需求和偏好各不相同,电子健康不能取代患者和医疗保健专业人员之间的个人互动。我们的研究结果指出了患者评估和分层的重要性,以确保适当使用电子健康。
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