The development of a self-help intervention to build social confidence in people living with visible skin conditions or scars: a think-aloud study.

Madeline Pasterfield, Sally-Anne Clarke, Andrew R Thompson
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引用次数: 12

Abstract

Introduction: People with a visible difference, such as scarring or a skin condition, can experience anxiety and intrusive reactions from others when in social situations. The use of products to conceal marks on the skin is provided in a number of different hospital services and by charities. However, there are relatively few psychosocial interventions available for these individuals.

Objectives: To examine the views of skin camouflage users and practitioners on the acceptability, usability and need for a specifically developed cognitive behavioural therapy (CBT) self-help booklet.

Methods: A think-aloud protocol and descriptive form of thematic analysis were used to ascertain participants' views of this novel psychosocial intervention. Nine participants took part in think-aloud interviews that were analysed using thematic analysis. Six skin camouflage users and three skin camouflage practitioners participated in the study.

Results: Support for the relevance, acceptability and usability of the booklet was found from both participants who used camouflage and those who provided it. However, some participants reported that they would envisage that some people would need additional support so as to be able to use the techniques described within the booklet.

Conclusions: This study represents an important step towards developing a brief self-help intervention for people with living with visible skin conditions or scars and demonstrates the importance of seeking feedback from experts by experience on theoretically informed psychological interventions for this patient group.

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开发一种自助干预措施,以建立明显皮肤状况或疤痕患者的社会信心:一项大胆思考的研究。
引言:有明显差异的人,如疤痕或皮肤状况,在社交场合可能会经历焦虑和他人的侵扰性反应。许多不同的医院服务机构和慈善机构都提供使用产品来掩盖皮肤上的痕迹。然而,可用于这些人的心理社会干预措施相对较少。目的:研究皮肤伪装使用者和从业者对专门开发的认知行为疗法(CBT)自助小册子的可接受性、可用性和必要性的看法。方法:采用大声思考方案和主题分析的描述性形式来确定参与者对这种新型心理社会干预的看法。九名参与者参加了有声思考的访谈,访谈采用主题分析法进行分析。六名皮肤伪装使用者和三名皮肤伪装从业者参与了这项研究。结果:使用伪装的参与者和提供伪装的参与者都支持小册子的相关性、可接受性和可用性。然而,一些参与者报告说,他们认为有些人需要额外的支持才能使用小册子中描述的技术。结论:这项研究代表着为患有可见皮肤病或疤痕的患者制定简短的自助干预措施的重要一步,并证明了通过对该患者群体的理论知情心理干预经验寻求专家反馈的重要性。
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