Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network.

EGEMS (Washington, DC) Pub Date : 2019-03-29 DOI:10.5334/egems.273

V Paul Doria-Rose, Robert T Greenlee, Diana S M Buist, Diana L Miglioretti, Douglas A Corley, Jeffrey S Brown, Heather A Clancy, Leah Tuzzio, Lisa M Moy, Mark C Hornbrook, Martin L Brown, Debra P Ritzwoller, Lawrence H Kushi, Sarah M Greene

{"title":"Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network.","authors":"V Paul Doria-Rose, Robert T Greenlee, Diana S M Buist, Diana L Miglioretti, Douglas A Corley, Jeffrey S Brown, Heather A Clancy, Leah Tuzzio, Lisa M Moy, Mark C Hornbrook, Martin L Brown, Debra P Ritzwoller, Lawrence H Kushi, Sarah M Greene","doi":"10.5334/egems.273","DOIUrl":null,"url":null,"abstract":"<p><p>The Cancer Research Network (CRN) is a consortium of 12 research groups, each affiliated with a nonprofit integrated health care delivery system, that was first funded in 1998. The overall goal of the CRN is to support and facilitate collaborative cancer research within its component delivery systems. This paper describes the CRN's 20-year experience and evolution. The network combined its members' scientific capabilities and data resources to create an infrastructure that has ultimately supported over 275 projects. Insights about the strengths and limitations of electronic health data for research, approaches to optimizing multidisciplinary collaboration, and the role of a health services research infrastructure to complement traditional clinical trials and large observational datasets are described, along with recommendations for other research consortia.</p>","PeriodicalId":72880,"journal":{"name":"EGEMS (Washington, DC)","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2019-03-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6450242/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"EGEMS (Washington, DC)","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.5334/egems.273","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}

引用次数: 0

Abstract

The Cancer Research Network (CRN) is a consortium of 12 research groups, each affiliated with a nonprofit integrated health care delivery system, that was first funded in 1998. The overall goal of the CRN is to support and facilitate collaborative cancer research within its component delivery systems. This paper describes the CRN's 20-year experience and evolution. The network combined its members' scientific capabilities and data resources to create an infrastructure that has ultimately supported over 275 projects. Insights about the strengths and limitations of electronic health data for research, approaches to optimizing multidisciplinary collaboration, and the role of a health services research infrastructure to complement traditional clinical trials and large observational datasets are described, along with recommendations for other research consortia.

Abstract Image

查看原文

微信好友朋友圈 QQ好友复制链接

本刊更多论文

数据、科学和基础设施合作：癌症研究网络的20年历程。

癌症研究网络（CRN）是一个由12个研究小组组成的联盟，每个小组都隶属于一个非营利的综合医疗保健提供系统，该系统于1998年首次获得资助。CRN的总体目标是支持和促进其成分递送系统内的癌症合作研究。本文介绍了CRN 20年的发展历程。该网络将其成员的科学能力和数据资源相结合，创建了一个基础设施，最终支持了275多个项目。介绍了关于研究用电子健康数据的优势和局限性的见解、优化多学科合作的方法，以及卫生服务研究基础设施在补充传统临床试验和大型观测数据集方面的作用，以及对其他研究联盟的建议。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文去求助

来源期刊

EGEMS (Washington, DC)

自引率

0.00%

发文量