Consensus clinical approach for a newly diagnosed systemic juvenile idiopathic arthritis among members of the pediatric rheumatology Arab group

Hend M. Alkwai , Aisha Mirza , Reem Abdwani , Abdulrahman Asiri , Reima Bakry , Abdullatif Alenazi , Khulood Khawaja , Hala Lotfy , Muna Almutairi , Mohammed Muzaffer , Wafaa Al-Suwairi , Raed Alzyoud , Sulaiman M. Al-Mayouf
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引用次数: 1

Abstract

Background

Systemic juvenile idiopathic arthritis (sJIA) is a diagnosis of exclusion. The complex nature and clinical variety of the disease, as well as the vast clinical variation of disease presentation, may lead to difficulties in disease detection and subsequent delays in treatment.

Aim

To provide a consensus guidance on the management of newly diagnosed sJIA patients among pediatric rheumatologists in Arab countries.

Methods

This work was conducted in two phases. The first phase utilized an electronic survey sent through an email invitation to all pediatric rheumatologists in Arab countries. In the second phase, a Task Force of ten expert pediatric rheumatologists from Arab countries met through a series of virtual meetings. Results obtained in phase one were prioritized using a nominal group and Delphi-like techniques in phase two.

Results

Seven overarching principles and a set of recommendations were approved by the Task Force to form the final consensus.

Conclusion

This is the first consensus on a clinical approach for pediatric rheumatic diseases among Arab pediatric rheumatologists. It is presented as a guidance on the clinical approach to sJIA that requires further evidence, and future updates are anticipated.

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共识临床方法新诊断的系统性青少年特发性关节炎在儿童风湿病阿拉伯组的成员
背景:系统性幼年特发性关节炎(sJIA)是一种排除性诊断。该疾病的复杂性和临床多样性,以及疾病表现的巨大临床差异,可能导致疾病检测困难和随后的治疗延误。目的为阿拉伯国家儿科风湿病学家对新诊断的sJIA患者的管理提供共识指导。方法本研究分两个阶段进行。第一阶段通过电子邮件邀请阿拉伯国家的所有儿科风湿病学家进行电子调查。在第二阶段,由来自阿拉伯国家的10名儿科风湿病专家组成的工作组通过一系列虚拟会议进行了会面。第一阶段获得的结果在第二阶段使用名义组和德尔菲类技术进行优先排序。结果工作组通过了七项总体原则和一套建议,形成了最终共识。结论:这是阿拉伯儿科风湿病学家首次就儿科风湿病的临床方法达成共识。它是作为sJIA临床方法的指南提出的,需要进一步的证据,预计未来会更新。
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来源期刊
International Journal of Pediatrics and Adolescent Medicine
International Journal of Pediatrics and Adolescent Medicine Medicine-Pediatrics, Perinatology and Child Health
CiteScore
4.20
自引率
0.00%
发文量
17
审稿时长
17 weeks
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