Fibromyalgia in social media: content and quality of the information analysis of videos on the YouTube platform.

IF 2.5 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Informatics for Health & Social Care Pub Date : 2022-07-03 Epub Date: 2021-11-08 DOI:10.1080/17538157.2021.1990934
Caik C Macedo, Pedro H S Figueiredo, Nelcilaine R B Gonçalves, Clarita A Afonso, Rosana M Martins, Jousielle M Santos, Thaís P Gaiad, Borja Sañudo, Vinicius C Oliveira, Vanessa A Mendonça, Ana Cristina R Lacerda
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引用次数: 1

Abstract

To evaluate the fibromyalgia (FM) content in YouTube videos and verify if American College of Rheumatology (ACR) guidelines are being met. The videos were searched with the keyword "Fibromyalgia." Two independent researchers evaluated and coded specific characteristics of the videos. The popularity of the videos, the presentation properties, and content related to FM according to the ACR criteria were analyzed. Of the 200 videos included, the majority were presented by health professionals, 61.5%. Most videos covered more than one subject, 38.5%. The videos presented by health professionals were the most viewed. Following the ACR guidelines, 38% defined FM, 24% described the etiology, 19.5% described the diagnostic criteria and 52% presented recommended management strategies. The results indicate that users mainly watch videos published by health professionals. Most of the published videos do not follow the information recommended by the ACR guidelines. Therefore, videos should be interpreted with caution, not being the most appropriate resource for health education for patients with FM. Most of the videos published on YouTube about FM do not meet the ACR guidelines for FM.

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社交媒体中的纤维肌痛:YouTube平台上视频信息的内容和质量分析。
评估YouTube视频中的纤维肌痛(FM)内容,并验证是否符合美国风湿病学会(ACR)的指南。这些视频的关键词是“纤维肌痛”。两名独立研究人员对视频的具体特征进行了评估和编码。根据ACR标准,分析了视频的受欢迎程度、呈现属性以及与FM相关的内容。在纳入的200个视频中,大多数是由卫生专业人员(61.5%)呈现的。大多数视频涵盖了不止一个主题,占38.5%。由卫生专业人员提供的视频观看次数最多。根据ACR指南,38%定义了FM, 24%描述了病因,19.5%描述了诊断标准,52%提出了推荐的管理策略。结果表明,用户主要观看由卫生专业人员发布的视频。大多数发布的视频没有遵循ACR指南建议的信息。因此,视频应谨慎解读,并不是对FM患者进行健康教育的最合适资源。YouTube上发布的大多数关于FM的视频都不符合ACR对FM的指导方针。
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来源期刊
CiteScore
6.10
自引率
4.20%
发文量
21
审稿时长
>12 weeks
期刊介绍: Informatics for Health & Social Care promotes evidence-based informatics as applied to the domain of health and social care. It showcases informatics research and practice within the many and diverse contexts of care; it takes personal information, both its direct and indirect use, as its central focus. The scope of the Journal is broad, encompassing both the properties of care information and the life-cycle of associated information systems. Consideration of the properties of care information will necessarily include the data itself, its representation, structure, and associated processes, as well as the context of its use, highlighting the related communication, computational, cognitive, social and ethical aspects. Consideration of the life-cycle of care information systems includes full range from requirements, specifications, theoretical models and conceptual design through to sustainable implementations, and the valuation of impacts. Empirical evidence experiences related to implementation are particularly welcome. Informatics in Health & Social Care seeks to consolidate and add to the core knowledge within the disciplines of Health and Social Care Informatics. The Journal therefore welcomes scientific papers, case studies and literature reviews. Examples of novel approaches are particularly welcome. Articles might, for example, show how care data is collected and transformed into useful and usable information, how informatics research is translated into practice, how specific results can be generalised, or perhaps provide case studies that facilitate learning from experience.
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