As if I was a spacecraft returning to Earth's atmosphere. Expanding insights into illness narratives and childhood cancer through evocative autoethnography.

IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Health Pub Date : 2024-11-01 Epub Date: 2023-09-20 DOI:10.1177/13634593231200123
Eva-Mari Andersen
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Abstract

Today, a majority of children diagnosed with cancer are expected to grow up and live-hopefully until old age. Still, knowledge of the lived experience of childhood cancer survivors is sparse. In pursuit of knowledge expansion, by combining my intersecting roles as an academic, educational counselor, and childhood cancer survivor, I approach my personal illness narrative. By means of evocative autoethnography, I write intentionally vulnerably about my experiences and make them available for consideration. I explore my narrative through archives, artifacts, memories of the past, and conversations evoked in the present. I re-visit the cultural landscape of a southern Norwegian girl growing up in the 00s with cancer. Through this, my illness narrative presents as positioned, tangled, and interwoven with a developmental trajectory. Specific educational experiences seem to linger, and many are related to being absent from or re-entering school after the onset of illness. To grasp the intersecting and conflicting experiences of being very ill while also young, I suggest Erik Erikson's moratorium as a key concept. To complement Arthur Frank's illness narratives of restitution, chaos, and quest, I establish the moratorium narrative. As a fresh resource, the moratorium narrative underlines the need to make sensitive our academic community's gaze on illness trajectories unfolding in formative phases and illness narratives defined by growing up. By providing a point of recognition that prompts elaboration, this could also provide the young and very ill with a much-needed narrative space of opportunity, of which more narratives are invited and insisted upon.

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就好像我是一艘返回地球大气层的航天器。通过令人回味的民族志扩展对疾病叙述和儿童癌症的见解。
如今,大多数被诊断为癌症的儿童有望长大成人,过上幸福的生活,直到老年。尽管如此,对癌症儿童幸存者的生活经历的了解还是很少。在追求知识扩展的过程中,通过结合我作为学者、教育顾问和儿童癌症幸存者的交叉角色,我开始讲述我的个人疾病。通过唤起自我民族志的方式,我有意脆弱地写下我的经历,并将其提供给人们考虑。我通过档案、文物、过去的记忆和现在引发的对话来探索我的叙事。我回顾了一位在00年代因癌症而成长的挪威南部女孩的文化景观。通过这一点,我的疾病叙事呈现出一种定位、纠缠和交织的发展轨迹。具体的教育经历似乎挥之不去,其中许多与生病后缺课或重新入学有关。为了理解年轻时患重病的交叉和冲突经历,我建议埃里克·埃里克森将暂停期作为一个关键概念。为了补充Arthur Frank关于归还、混乱和追求的疾病叙事,我建立了暂停叙事。作为一种新的资源,暂停叙事强调了我们学术界对形成阶段的疾病轨迹和成长过程中定义的疾病叙事的关注。通过提供一个促使阐述的认可点,这也可以为年轻人和重病患者提供一个急需的叙事机会空间,邀请并坚持更多的叙事。
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来源期刊
Health
Health Multiple-
CiteScore
4.90
自引率
0.00%
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0
期刊介绍: Health: is published four times per year and attempts in each number to offer a mix of articles that inform or that provoke debate. The readership of the journal is wide and drawn from different disciplines and from workers both inside and outside the health care professions. Widely abstracted, Health: ensures authors an extensive and informed readership for their work. It also seeks to offer authors as short a delay as possible between submission and publication. Most articles are reviewed within 4-6 weeks of submission and those accepted are published within a year of that decision.
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