Patient and primary care practitioners' perspectives on consultations for fibromyalgia: a qualitative evidence synthesis.

Ailish Byrne, Katherine Jones, Michael Backhouse, Fiona Rose, Emma Moatt, Christina van der Feltz-Cornelis
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引用次数: 1

Abstract

Background: Fibromyalgia presents a challenge to both the patients experiencing symptoms and the staff aiming to treat them. This qualitative review aimed to synthesise how patients and practitioners experience primary care consultations, develop a rounded picture of how they perceive each other, the challenges to primary care consultation and how they might be tackled.

Methods: CINAHL, Embase, CENTRAL and Medline were searched from inception to November 2021. Qualitative studies were included if they explored the perspectives and experiences of either fibromyalgia patients or primary care practitioners. Quantitative data, studies not published in English, not set in primary care or that did not distinguish the type of patient or clinician were excluded. Included studies were analysed using thematic synthesis and their quality assessed.

Results: In total, 30 studies met the inclusion criteria. Thematic synthesis identified three overarching themes: (1) life turned upside down - exploring the chaos experienced by patients as they seek help; (2) negative cycle - highlighting how patient and practitioner factors can create a detrimental cycle; and (3) breaking the cycle - validating patient-doctor relationships underpinned by clear communication can help break the negative cycle.

Conclusions: Fibromyalgia patients experience uncertainty and chaos that can clash with the attitudes of GPs and the help they can feasibly provide. Difficult consultations in which neither the GP nor patient are satisfied can easily occur. Promoting supportive, reciprocal and open patient-doctor relationships is essential. Future research is required to further explore GP attitudes and to develop an intervention that could improve consultations, patient outcomes and GP satisfaction.

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患者和初级保健从业者对纤维肌痛咨询的看法:定性证据综合。
背景:纤维肌痛对出现症状的患者和治疗人员都是一个挑战。这项定性审查旨在综合患者和从业者如何体验初级保健咨询,全面了解他们如何看待彼此,初级保健咨询面临的挑战以及如何应对这些挑战。方法:检索CINAHL、Embase、CENTRAL和Medline自成立至2021年11月。如果定性研究探讨了纤维肌痛患者或初级保健从业者的观点和经验,则纳入其中。定量数据、未以英语发表的研究、未在初级保健中进行的研究或未区分患者或临床医生类型的研究被排除在外。纳入的研究采用专题综合法进行分析,并对其质量进行评估。结果:总共有30项研究符合纳入标准。主题综合确定了三个总体主题:(1)生活发生了翻天覆地的变化——探索患者在寻求帮助时所经历的混乱;(2) 负循环-强调患者和从业者因素如何造成有害循环;以及(3)打破循环——以清晰的沟通为基础的医患关系验证有助于打破负面循环。结论:纤维肌痛患者经历了不确定性和混乱,这可能与全科医生的态度以及他们可以提供的帮助相冲突。全科医生和患者都不满意的艰难会诊很容易发生。促进支持性、互惠性和开放性的医患关系至关重要。未来的研究需要进一步探索全科医生的态度,并制定一种干预措施,以提高咨询、患者结果和全科医生满意度。
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