Social support experiences of hispanic/latino parents of childhood cancer survivors in a safety-net hospital: a qualitative study.

IF 1.5 4区医学 Q4 PSYCHOLOGY, SOCIAL Journal of Psychosocial Oncology Pub Date : 2024-01-01 Epub Date: 2023-10-03 DOI:10.1080/07347332.2023.2259365

Carol Y Ochoa-Dominguez, Randall Y Chan, Lissette Cervantes, Matthew P Banegas, Kimberly A Miller

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Abstract

Purpose: To describe the social support experiences of Hispanic/Latino parents while caregiving for childhood cancer survivors.

Research approach: Semi-structured one-on-one interviews were conducted among 15 caregivers from a safety-net hospital in Los Angeles. A thematic analysis approach was used to analyze data.

Findings: The positive influence of social support throughout their caregiving experience included (1) sharing information-enhanced knowledge, (2) receiving comfort and encouragement, (3) receiving tangible assistance reducing the caregiving burden, and (4) enhancing caregiving empowerment/self-efficacy. Sub-themes regarding the lack of social support included (1) being a single parent and (2) family and friends withdrawing after the child's cancer diagnosis.

Conclusion: We found Hispanic/Latino parents strongly value social support as it enables them to have essential resources that support caregiving for their child and themselves. Efforts should ensure that caregivers are routinely screened to identify their supportive needs so that support services for caregivers can be optimized and tailored, as those with a lack of social support may experience excessive caregiver burden.

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儿童癌症幸存者父母在安全网医院的社会支持经历：一项定性研究。

目的：描述西班牙裔/拉丁裔父母在照顾癌症儿童幸存者时的社会支持经历。研究方法：对洛杉矶一家安全网医院的15名护理人员进行了半结构化的一对一访谈。采用专题分析方法分析数据。研究结果：在他们的护理经历中，社会支持的积极影响包括（1）分享信息增强知识，（2）获得安慰和鼓励，（3）获得切实的帮助，减轻护理负担，以及（4）增强护理赋权/自我效能。关于缺乏社会支持的次要因素包括（1）是单亲，（2）在孩子被诊断为癌症后，家人和朋友退出。结论：我们发现西班牙裔/拉丁裔父母非常重视社会支持，因为这使他们能够拥有必要的资源来支持照顾孩子和自己。应努力确保对照顾者进行常规筛查，以确定他们的支持需求，从而优化和定制照顾者的支持服务，因为那些缺乏社会支持的人可能会经历过多的照顾者负担。

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来源期刊

Journal of Psychosocial Oncology PSYCHOLOGY, SOCIAL-

CiteScore

4.20

自引率

0.00%

发文量

期刊介绍： Here is your single source of integrated information on providing the best psychosocial care possible from the knowledge available from many disciplines.The Journal of Psychosocial Oncology is an essential source for up-to-date clinical and research material geared toward health professionals who provide psychosocial services to cancer patients, their families, and their caregivers. The journal—the first interdisciplinary resource of its kind—is in its third decade of examining exploratory and hypothesis testing and presenting program evaluation research on critical areas, including: the stigma of cancer; employment and personal problems facing cancer patients; patient education.